Women's experiences in a community-based participatory research randomized controlled trial

Shawn M. Kneipp, Barbara J. Lutz, Catherine Levonian, Christa Cook, Jill B. Hamilton, Dawne Roberson

Research output: Contribution to journalArticle

Abstract

Integrating community-based participatory research (CBPR) into traditional study designs can enhance outcomes in studies with disadvantaged groups. Little is known, however, about study participants' experiences with these approaches, the underlying processes involved in creating more positive outcomes, and whether undesirable effects on study outcomes occur simultaneously. We conducted focus group interviews with 31 disadvantaged women who participated in a CBPR-driven randomized controlled trial (RCT) both to explore their study experiences and to obtain their interpretations of select study findings. Using dimensional analysis, we found the tailored health questionnaire, treatment by study staff members, and RCT participants' understandings of and responses to randomization were salient to what women described as transformative experiences that occurred over the course of the RCT. These findings have implications for understanding how CBPR and non-CBPR aspects of interventions and study designs have the potential to affect both process and endpoint study outcomes.

Original languageEnglish (US)
Pages (from-to)847-860
Number of pages14
JournalQualitative Health Research
Volume23
Issue number6
DOIs
StatePublished - Jun 2013

Keywords

  • dimensional analysis
  • focus groups
  • health outcomes
  • intervention programs
  • longitudinal studies
  • marginalized populations
  • participatory action research (PAR)

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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  • Cite this

    Kneipp, S. M., Lutz, B. J., Levonian, C., Cook, C., Hamilton, J. B., & Roberson, D. (2013). Women's experiences in a community-based participatory research randomized controlled trial. Qualitative Health Research, 23(6), 847-860. https://doi.org/10.1177/1049732313483924