Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: A structured interview study

Saskia C. Sanderson, Michael A. Diefenbach, Randi Zinberg, Carol R. Horowitz, Margaret Smirnoff, Micol Zweig, Samantha Streicher, Ethylin Wang Jabs, Lynne D. Richardson

Research output: Contribution to journalArticlepeer-review

Abstract

Patients from traditionally underrepresented communities need to be involved in discussions around genomics research including attitudes towards participation and receiving personal results. Structured interviews, including openended and closed-ended questions, were conducted with 205 patients in an inner-city hospital outpatient clinic: 48 % of participants self-identified as Black or African American, 29 % Hispanic, 10 % White; 49 % had an annual household income of

Original languageEnglish (US)
Pages (from-to)469-482
Number of pages14
JournalJournal of Community Genetics
Volume4
Issue number4
DOIs
StatePublished - Oct 2013
Externally publishedYes

Keywords

  • Genomicsresearch
  • Interest
  • Interviews
  • Patients
  • Personal results

ASJC Scopus subject areas

  • Genetics(clinical)
  • Public Health, Environmental and Occupational Health
  • Epidemiology

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