Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: A structured interview study

Saskia C. Sanderson, Michael A. Diefenbach, Randi Zinberg, Carol R. Horowitz, Margaret Smirnoff, Micol Zweig, Samantha Streicher, Ethylin Wang Jabs, Lynne D. Richardson

Research output: Contribution to journalArticle

Abstract

Patients from traditionally underrepresented communities need to be involved in discussions around genomics research including attitudes towards participation and receiving personal results. Structured interviews, including openended and closed-ended questions, were conducted with 205 patients in an inner-city hospital outpatient clinic: 48 % of participants self-identified as Black or African American, 29 % Hispanic, 10 % White; 49 % had an annual household income of

Original languageEnglish (US)
Pages (from-to)469-482
Number of pages14
JournalJournal of Community Genetics
Volume4
Issue number4
DOIs
StatePublished - Oct 2013
Externally publishedYes

Fingerprint

Genomics
Interviews
Hospital Outpatient Clinics
Urban Hospitals
Hispanic Americans
Research
African Americans

Keywords

  • Genomicsresearch
  • Interest
  • Interviews
  • Patients
  • Personal results

ASJC Scopus subject areas

  • Genetics(clinical)
  • Public Health, Environmental and Occupational Health
  • Epidemiology

Cite this

Willingness to participate in genomics research and desire for personal results among underrepresented minority patients : A structured interview study. / Sanderson, Saskia C.; Diefenbach, Michael A.; Zinberg, Randi; Horowitz, Carol R.; Smirnoff, Margaret; Zweig, Micol; Streicher, Samantha; Jabs, Ethylin Wang; Richardson, Lynne D.

In: Journal of Community Genetics, Vol. 4, No. 4, 10.2013, p. 469-482.

Research output: Contribution to journalArticle

Sanderson, SC, Diefenbach, MA, Zinberg, R, Horowitz, CR, Smirnoff, M, Zweig, M, Streicher, S, Jabs, EW & Richardson, LD 2013, 'Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: A structured interview study', Journal of Community Genetics, vol. 4, no. 4, pp. 469-482. https://doi.org/10.1007/s12687-013-0154-0
Sanderson, Saskia C. ; Diefenbach, Michael A. ; Zinberg, Randi ; Horowitz, Carol R. ; Smirnoff, Margaret ; Zweig, Micol ; Streicher, Samantha ; Jabs, Ethylin Wang ; Richardson, Lynne D. / Willingness to participate in genomics research and desire for personal results among underrepresented minority patients : A structured interview study. In: Journal of Community Genetics. 2013 ; Vol. 4, No. 4. pp. 469-482.
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