What Did Latino Family Caregivers Expect and Learn From Education Intervention “Caregivers Like Me”?

Dulce Cruz-Oliver, Manas Parikh, Cara L. Wallace, Theodore K. Malmstrom, Sandra Sanchez-Reilly

Research output: Contribution to journalArticle

Abstract

Objective: US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers. Methods: This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre–posttest questionnaires with open-ended questions. This study pertains to the qualitative results for the open-ended questions before and after education intervention. Results: Participants (N = 145) were mostly females (79%) with a mean age of 56 ± 15 years and reported (92%) active learning from intervention. The pretest open-ended question on expected learning identified 2 themes, care for the sick and self-care. It included 5 subthemes and the most common one was how to help the sick. The posttest question on actual learning identified the same 2 themes and 4 subthemes that were similar but different from the pretest. Accepting help and knowledge of services available were the most common. Conclusion: The education intervention Caregivers Like Me was able to improve attitudes toward EOL care because participants who wanted to help their loved ones realized that they need to accept professional help and were made aware of the services available.

Original languageEnglish (US)
Pages (from-to)404-410
Number of pages7
JournalAmerican Journal of Hospice and Palliative Medicine
Volume35
Issue number3
DOIs
StatePublished - Mar 1 2018
Externally publishedYes

Fingerprint

Hispanic Americans
Caregivers
Education
Learning
Problem-Based Learning
Terminal Care
Self Care
Cross-Sectional Studies

Keywords

  • education
  • EOL care
  • family caregiver
  • Hispanics
  • Latinos
  • open-ended questions
  • telenovela
  • video

ASJC Scopus subject areas

  • Medicine(all)

Cite this

What Did Latino Family Caregivers Expect and Learn From Education Intervention “Caregivers Like Me”? / Cruz-Oliver, Dulce; Parikh, Manas; Wallace, Cara L.; Malmstrom, Theodore K.; Sanchez-Reilly, Sandra.

In: American Journal of Hospice and Palliative Medicine, Vol. 35, No. 3, 01.03.2018, p. 404-410.

Research output: Contribution to journalArticle

Cruz-Oliver, Dulce ; Parikh, Manas ; Wallace, Cara L. ; Malmstrom, Theodore K. ; Sanchez-Reilly, Sandra. / What Did Latino Family Caregivers Expect and Learn From Education Intervention “Caregivers Like Me”?. In: American Journal of Hospice and Palliative Medicine. 2018 ; Vol. 35, No. 3. pp. 404-410.
@article{8252e594d3aa4b73989fa15ffbb076f1,
title = "What Did Latino Family Caregivers Expect and Learn From Education Intervention “Caregivers Like Me”?",
abstract = "Objective: US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers. Methods: This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre–posttest questionnaires with open-ended questions. This study pertains to the qualitative results for the open-ended questions before and after education intervention. Results: Participants (N = 145) were mostly females (79{\%}) with a mean age of 56 ± 15 years and reported (92{\%}) active learning from intervention. The pretest open-ended question on expected learning identified 2 themes, care for the sick and self-care. It included 5 subthemes and the most common one was how to help the sick. The posttest question on actual learning identified the same 2 themes and 4 subthemes that were similar but different from the pretest. Accepting help and knowledge of services available were the most common. Conclusion: The education intervention Caregivers Like Me was able to improve attitudes toward EOL care because participants who wanted to help their loved ones realized that they need to accept professional help and were made aware of the services available.",
keywords = "education, EOL care, family caregiver, Hispanics, Latinos, open-ended questions, telenovela, video",
author = "Dulce Cruz-Oliver and Manas Parikh and Wallace, {Cara L.} and Malmstrom, {Theodore K.} and Sandra Sanchez-Reilly",
year = "2018",
month = "3",
day = "1",
doi = "10.1177/1049909117709550",
language = "English (US)",
volume = "35",
pages = "404--410",
journal = "American Journal of Hospice and Palliative Medicine",
issn = "1049-9091",
publisher = "SAGE Publications Inc.",
number = "3",

}

TY - JOUR

T1 - What Did Latino Family Caregivers Expect and Learn From Education Intervention “Caregivers Like Me”?

AU - Cruz-Oliver, Dulce

AU - Parikh, Manas

AU - Wallace, Cara L.

AU - Malmstrom, Theodore K.

AU - Sanchez-Reilly, Sandra

PY - 2018/3/1

Y1 - 2018/3/1

N2 - Objective: US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers. Methods: This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre–posttest questionnaires with open-ended questions. This study pertains to the qualitative results for the open-ended questions before and after education intervention. Results: Participants (N = 145) were mostly females (79%) with a mean age of 56 ± 15 years and reported (92%) active learning from intervention. The pretest open-ended question on expected learning identified 2 themes, care for the sick and self-care. It included 5 subthemes and the most common one was how to help the sick. The posttest question on actual learning identified the same 2 themes and 4 subthemes that were similar but different from the pretest. Accepting help and knowledge of services available were the most common. Conclusion: The education intervention Caregivers Like Me was able to improve attitudes toward EOL care because participants who wanted to help their loved ones realized that they need to accept professional help and were made aware of the services available.

AB - Objective: US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers. Methods: This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre–posttest questionnaires with open-ended questions. This study pertains to the qualitative results for the open-ended questions before and after education intervention. Results: Participants (N = 145) were mostly females (79%) with a mean age of 56 ± 15 years and reported (92%) active learning from intervention. The pretest open-ended question on expected learning identified 2 themes, care for the sick and self-care. It included 5 subthemes and the most common one was how to help the sick. The posttest question on actual learning identified the same 2 themes and 4 subthemes that were similar but different from the pretest. Accepting help and knowledge of services available were the most common. Conclusion: The education intervention Caregivers Like Me was able to improve attitudes toward EOL care because participants who wanted to help their loved ones realized that they need to accept professional help and were made aware of the services available.

KW - education

KW - EOL care

KW - family caregiver

KW - Hispanics

KW - Latinos

KW - open-ended questions

KW - telenovela

KW - video

UR - http://www.scopus.com/inward/record.url?scp=85041599345&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85041599345&partnerID=8YFLogxK

U2 - 10.1177/1049909117709550

DO - 10.1177/1049909117709550

M3 - Article

C2 - 28592164

AN - SCOPUS:85041599345

VL - 35

SP - 404

EP - 410

JO - American Journal of Hospice and Palliative Medicine

JF - American Journal of Hospice and Palliative Medicine

SN - 1049-9091

IS - 3

ER -