Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial

Lori J. Stark, Lisa Opipari-Arrigan, Stephanie S. Filigno, Stacey L. Simon, Amanda Leonard, Peter J. Mogayzel, Joseph Rausch, Cynthia Zion, Scott W. Powers

Research output: Contribution to journalArticle

Abstract

Objectives Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years. Methods Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design. Results Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p =. 04). Change for the STC was not significant (0.41 kg, p =. 10). Conclusions A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.

Original languageEnglish (US)
Pages (from-to)510-521
Number of pages12
JournalJournal of pediatric psychology
Volume41
Issue number5
DOIs
StatePublished - Jun 26 2016

Keywords

  • Behavioral intervention
  • Cystic fibrosis
  • Nutrition
  • Web intervention

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology

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    Stark, L. J., Opipari-Arrigan, L., Filigno, S. S., Simon, S. L., Leonard, A., Mogayzel, P. J., Rausch, J., Zion, C., & Powers, S. W. (2016). Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial. Journal of pediatric psychology, 41(5), 510-521. https://doi.org/10.1093/jpepsy/jsv108