Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial

Lori J. Stark; Lisa Opipari-Arrigan; Stephanie S. Filigno; Stacey L. Simon; Amanda Leonard; Peter J. Mogayzel; Joseph Rausch; Cynthia Zion; Scott W. Powers

doi:10.1093/jpepsy/jsv108

Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial

Lori J. Stark, Lisa Opipari-Arrigan, Stephanie S. Filigno, Stacey L. Simon, Amanda Leonard, Peter J. Mogayzel, Joseph Rausch, Cynthia Zion, Scott W. Powers

School of Medicine

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

Objectives Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years. Methods Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design. Results Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p =. 04). Change for the STC was not significant (0.41 kg, p =. 10). Conclusions A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.

Original language	English (US)
Pages (from-to)	510-521
Number of pages	12
Journal	Journal of pediatric psychology
Volume	41
Issue number	5
DOIs	https://doi.org/10.1093/jpepsy/jsv108
State	Published - Jun 26 2016

Keywords

Behavioral intervention
Cystic fibrosis
Nutrition
Web intervention

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Developmental and Educational Psychology

Access to Document

10.1093/jpepsy/jsv108

Cite this

@article{8d6f8c15e9394e3285521b637ca69975,

title = "Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial",

abstract = "Objectives Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years. Methods Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design. Results Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p =. 04). Change for the STC was not significant (0.41 kg, p =. 10). Conclusions A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.",

keywords = "Behavioral intervention, Cystic fibrosis, Nutrition, Web intervention",

author = "Stark, {Lori J.} and Lisa Opipari-Arrigan and Filigno, {Stephanie S.} and Simon, {Stacey L.} and Amanda Leonard and Mogayzel, {Peter J.} and Joseph Rausch and Cynthia Zion and Powers, {Scott W.}",

note = "Funding Information: This research was supported by a grant from the Cystic Fibrosis Foundation, Grant # STARK10A0, and a CCHMC Place Outcomes Award (to L.J.S.); National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program, grant 8 UL1 TR000077-05. The CTSA program is led by the NIH National Center for Advancing Translational Sciences (NCATS). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Clinical Trials Registration Number: 1546727. Publisher Copyright: {\textcopyright} 2015 The Author 2015.",

year = "2016",

month = jun,

day = "26",

doi = "10.1093/jpepsy/jsv108",

language = "English (US)",

volume = "41",

pages = "510--521",

journal = "Journal of pediatric psychology",

issn = "0146-8693",

publisher = "Oxford University Press",

number = "5",

}

TY - JOUR

T1 - Web-based intervention for nutritional management in cystic fibrosis

T2 - Development, usability, and pilot trial

AU - Stark, Lori J.

AU - Opipari-Arrigan, Lisa

AU - Filigno, Stephanie S.

AU - Simon, Stacey L.

AU - Leonard, Amanda

AU - Mogayzel, Peter J.

AU - Rausch, Joseph

AU - Zion, Cynthia

AU - Powers, Scott W.

N1 - Funding Information: This research was supported by a grant from the Cystic Fibrosis Foundation, Grant # STARK10A0, and a CCHMC Place Outcomes Award (to L.J.S.); National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program, grant 8 UL1 TR000077-05. The CTSA program is led by the NIH National Center for Advancing Translational Sciences (NCATS). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Clinical Trials Registration Number: 1546727. Publisher Copyright: © 2015 The Author 2015.

PY - 2016/6/26

Y1 - 2016/6/26

N2 - Objectives Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years. Methods Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design. Results Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p =. 04). Change for the STC was not significant (0.41 kg, p =. 10). Conclusions A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.

AB - Objectives Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years. Methods Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design. Results Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p =. 04). Change for the STC was not significant (0.41 kg, p =. 10). Conclusions A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.

KW - Behavioral intervention

KW - Cystic fibrosis

KW - Nutrition

KW - Web intervention

UR - http://www.scopus.com/inward/record.url?scp=84973442968&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84973442968&partnerID=8YFLogxK

U2 - 10.1093/jpepsy/jsv108

DO - 10.1093/jpepsy/jsv108

M3 - Article

C2 - 26582520

AN - SCOPUS:84973442968

SN - 0146-8693

VL - 41

SP - 510

EP - 521

JO - Journal of pediatric psychology

JF - Journal of pediatric psychology

IS - 5

ER -

Web-based intervention for nutritional management in cystic fibrosis: Development, usability, and pilot trial

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this