Waiting for a Pediatric Chronic Pain Clinic Evaluation

A Prospective Study Characterizing Waiting Times and Symptom Trajectories

Tonya M. Palermo, Margaret Slack, Chuan Zhou, Rachel Aaron, Emma Fisher, Sade Rodriguez

Research output: Contribution to journalArticle

Abstract

Chronic pain during childhood is prevalent and costly, but the access to interdisciplinary pain care is limited. Studies investigating adults waiting for pain clinic evaluation found that symptoms and quality of life deteriorate over the waiting period, but little is known about the experience of adolescents. Therefore, we aimed to determine wait list times and the longitudinal trends of pain and physical, mental, and social health over a 12-week period. In total, 97 adolescents, aged 10 to 18 years (M = 14.7 years, 82% female), waiting for evaluation at an interdisciplinary pediatric pain clinic completed assessments at enrollment and at 4-, 8-, and 12-week follow-up. We performed a review of the medical record of attendance patterns 12 months later. Twelve adolescents and their parents also completed qualitative interviews, describing their experience of waiting for evaluation. Wait times averaged 197.5 days (range = 69–758 days) from the time of referral to the first-attended appointment, and 86.6% of youths completed appointments. Longitudinal repeated measures analyses demonstrated little improvement in pain or other domains of functioning over the 12-week period. In qualitative interviews, families described anxious anticipation for the upcoming appointment, combined with frustration in waiting. Findings highlight the need to consider approaches to reduce wait times and provide early intervention for youths awaiting pain clinic evaluation. Perspective: This study extends the literature on the characteristics and symptom trajectories of adolescents during the wait period for interdisciplinary pain clinic evaluation, described previously only in adults with chronic pain. Findings demonstrated an average wait time of 6.5 months, during which youths’ pain and physical and social health remained impaired.

Original languageEnglish (US)
JournalJournal of Pain
DOIs
StateAccepted/In press - Jan 1 2018
Externally publishedYes

Fingerprint

Pain Clinics
Chronic Pain
Prospective Studies
Pediatrics
Pain
Appointments and Schedules
Interviews
Frustration
Symptom Assessment
Medical Records
Mental Health
Referral and Consultation
Parents
Quality of Life
Health

Keywords

  • Chronic pain
  • evaluation
  • pediatric
  • waiting list

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology
  • Anesthesiology and Pain Medicine

Cite this

Waiting for a Pediatric Chronic Pain Clinic Evaluation : A Prospective Study Characterizing Waiting Times and Symptom Trajectories. / Palermo, Tonya M.; Slack, Margaret; Zhou, Chuan; Aaron, Rachel; Fisher, Emma; Rodriguez, Sade.

In: Journal of Pain, 01.01.2018.

Research output: Contribution to journalArticle

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