TY - JOUR
T1 - Veterans' attitudes regarding a database for genomic research
AU - Kaufman, David
AU - Murphy, Juli
AU - Erby, Lori
AU - Hudson, Kathy
AU - Scott, Joan
PY - 2009/5
Y1 - 2009/5
N2 - Purpose: Large cohort studies to investigate interactions between genes, environment, and lifestyle require large representative samples of the population. The Department of Veterans Affairs health care system is uniquely positioned to carry out such research, with a large patient population and a sophisticated system of electronic medical records. As Veterans Affairs considers establishing a large database of genetic information and medical records for research purposes, a survey of 931 Veterans Affairs patients was carried out to measure their willingness to participate, what their concerns would be, and their preferences about some aspects of study design. Methods: A sample of veterans who receive Veterans Affairs health care was surveyed online in April and May of 2008. The proposed genomic study was described to respondents, who then were asked about their support for the study and willingness to participate, and their opinions about the study and some of its components. A descriptive analysis examined differences in attitudes among demographic groups, and whether general beliefs were associated with support or willingness to participate. Results: Most respondents (83%) said the database should definitely or probably be created, and overall, 71% said they would definitely or probably participate. Conclusion: Majorities of Veterans Affairs health patients in a broad range of demographic groups supported the establishment of a genomic database and showed willingness to participate. Although the desire to learn about one's own health from the study was high, altruistic characteristics were strongly related to whether or not veterans would participate.
AB - Purpose: Large cohort studies to investigate interactions between genes, environment, and lifestyle require large representative samples of the population. The Department of Veterans Affairs health care system is uniquely positioned to carry out such research, with a large patient population and a sophisticated system of electronic medical records. As Veterans Affairs considers establishing a large database of genetic information and medical records for research purposes, a survey of 931 Veterans Affairs patients was carried out to measure their willingness to participate, what their concerns would be, and their preferences about some aspects of study design. Methods: A sample of veterans who receive Veterans Affairs health care was surveyed online in April and May of 2008. The proposed genomic study was described to respondents, who then were asked about their support for the study and willingness to participate, and their opinions about the study and some of its components. A descriptive analysis examined differences in attitudes among demographic groups, and whether general beliefs were associated with support or willingness to participate. Results: Most respondents (83%) said the database should definitely or probably be created, and overall, 71% said they would definitely or probably participate. Conclusion: Majorities of Veterans Affairs health patients in a broad range of demographic groups supported the establishment of a genomic database and showed willingness to participate. Although the desire to learn about one's own health from the study was high, altruistic characteristics were strongly related to whether or not veterans would participate.
KW - Genomics
KW - Public opinion
KW - Public policy
KW - United States Department of Veterans Affairs
KW - Veterans
UR - http://www.scopus.com/inward/record.url?scp=67249087182&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=67249087182&partnerID=8YFLogxK
U2 - 10.1097/GIM.0b013e31819994f8
DO - 10.1097/GIM.0b013e31819994f8
M3 - Article
C2 - 19346960
AN - SCOPUS:67249087182
SN - 1098-3600
VL - 11
SP - 329
EP - 337
JO - Genetics in Medicine
JF - Genetics in Medicine
IS - 5
ER -