Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics

Research output: Contribution to journalArticle

Abstract

Objective:Understanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.Design:Cross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.Setting:Participants lived in the greater Baltimore, Maryland and Washington DC suburban area.Participants:A sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs.Measurements:Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.Results:PWD had a mean of 10.6 (±4.8) unmet needs out of 43 items (24.8%). Unmet needs were most common in Home/Personal Safety (97.4%), General Health Care (83.1%), and Daily Activities (73.2%) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.Conclusions:Unmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.

Original languageEnglish (US)
JournalInternational Psychogeriatrics
DOIs
StatePublished - Jan 1 2019

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Caregivers
Dementia
Quality of Life
Education
Baltimore
Needs Assessment
Cognition
Linear Models
Regression Analysis
Demography
Delivery of Health Care
Safety

Keywords

  • care recipients
  • caregivers
  • community-living
  • dementia
  • Key words:
  • unmet needs

ASJC Scopus subject areas

  • Clinical Psychology
  • Gerontology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health

Cite this

@article{0dce1a55959e4bedba1120cb225d6e4d,
title = "Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics",
abstract = "Objective:Understanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.Design:Cross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.Setting:Participants lived in the greater Baltimore, Maryland and Washington DC suburban area.Participants:A sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs.Measurements:Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.Results:PWD had a mean of 10.6 (±4.8) unmet needs out of 43 items (24.8{\%}). Unmet needs were most common in Home/Personal Safety (97.4{\%}), General Health Care (83.1{\%}), and Daily Activities (73.2{\%}) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.Conclusions:Unmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.",
keywords = "care recipients, caregivers, community-living, dementia, Key words:, unmet needs",
author = "Black, {Betty E} and Johnston, {Deirdre Mary} and Leoutsakos, {Jeannie-Marie S} and Melissa Reuland and Jill Kelly and Halima Amjad and Karen Davis and Amber Willink and {Hendricks Sloan}, Danetta and Lyketsos, {Constantine G} and Samus, {Quincy Miles}",
year = "2019",
month = "1",
day = "1",
doi = "10.1017/S1041610218002296",
language = "English (US)",
journal = "International Psychogeriatrics",
issn = "1041-6102",
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T1 - Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics

AU - Black, Betty E

AU - Johnston, Deirdre Mary

AU - Leoutsakos, Jeannie-Marie S

AU - Reuland, Melissa

AU - Kelly, Jill

AU - Amjad, Halima

AU - Davis, Karen

AU - Willink, Amber

AU - Hendricks Sloan, Danetta

AU - Lyketsos, Constantine G

AU - Samus, Quincy Miles

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Objective:Understanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.Design:Cross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.Setting:Participants lived in the greater Baltimore, Maryland and Washington DC suburban area.Participants:A sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs.Measurements:Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.Results:PWD had a mean of 10.6 (±4.8) unmet needs out of 43 items (24.8%). Unmet needs were most common in Home/Personal Safety (97.4%), General Health Care (83.1%), and Daily Activities (73.2%) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.Conclusions:Unmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.

AB - Objective:Understanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.Design:Cross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.Setting:Participants lived in the greater Baltimore, Maryland and Washington DC suburban area.Participants:A sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs.Measurements:Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.Results:PWD had a mean of 10.6 (±4.8) unmet needs out of 43 items (24.8%). Unmet needs were most common in Home/Personal Safety (97.4%), General Health Care (83.1%), and Daily Activities (73.2%) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.Conclusions:Unmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.

KW - care recipients

KW - caregivers

KW - community-living

KW - dementia

KW - Key words:

KW - unmet needs

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U2 - 10.1017/S1041610218002296

DO - 10.1017/S1041610218002296

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JO - International Psychogeriatrics

JF - International Psychogeriatrics

SN - 1041-6102

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