Understanding respect

Learning from patients

N. W. Dickert, Nancy E Kass

Research output: Contribution to journalArticle

Abstract

Background: The importance of respecting patients and participants in clinical research is widely recognised. However, what it means to respect persons beyond recognising them as autonomous is unclear, and little is known about what patients find to be respectful. Objective: To understand patients' conceptions of respect and what it means to be respected by medical providers. Design: Qualitative study from an academic cardiology clinic, using semistructured interviews with 18 survivors of sudden cardiac death. Results: Patients believed that respecting persons incorporates the following major elements: empathy, care, autonomy, provision of information, recognition of individuality, dignity and attention to needs. Conclusions: Making patients feel respected, or valued as a person, is a multi-faceted task that involves more than recognising autonomy. While patients' views of respect do not determine what respect means, these patients expressed important intuitions that may be of substantial conceptual relevance.

Original languageEnglish (US)
Pages (from-to)419-423
Number of pages5
JournalJournal of Medical Ethics
Volume35
Issue number7
DOIs
StatePublished - Jul 2009

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respect
Learning
learning
human being
autonomy
individuality
intuition
empathy
Intuition
death
Sudden Cardiac Death
Cardiology
Individuality
interview
Survivors
Interviews
Research
Person

ASJC Scopus subject areas

  • Health Policy
  • Health(social science)
  • Issues, ethics and legal aspects

Cite this

Understanding respect : Learning from patients. / Dickert, N. W.; Kass, Nancy E.

In: Journal of Medical Ethics, Vol. 35, No. 7, 07.2009, p. 419-423.

Research output: Contribution to journalArticle

Dickert, N. W. ; Kass, Nancy E. / Understanding respect : Learning from patients. In: Journal of Medical Ethics. 2009 ; Vol. 35, No. 7. pp. 419-423.
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