Understanding patient experiences with scarring alopecia: a qualitative study with management implications

Alessandra Haskin, Crystal Aguh, Ginette A. Okoye

Research output: Contribution to journalArticlepeer-review


Introduction: Alopecia can have a significant negative impact on patient’s lives. The objective of this study is to describe some of the emotional and psychological challenges that affect women with scarring alopecia (SA). Methods: A qualitative study design was used with open-ended, individual interviews with 10 women with biopsy-proven SA. Interviews were audio-taped, transcribed verbatim and analyzed thematically using ATLAS.ti analysis software. Results: Four overarching major themes (with several subthemes) emerged including the following: the negative emotional impact of SA, difficulties with concealing hair loss, negative experiences with diagnosis/management, and the importance of support from others. Patients reported that many of these issues were under-emphasized during doctor visits. Conclusion: Analysis of patient responses indicated that patients with SA contend with significant emotional and psychological sequelae of their diagnosis.

Original languageEnglish (US)
Pages (from-to)1-4
Number of pages4
JournalJournal of Dermatological Treatment
StateAccepted/In press - Sep 21 2016


  • central centrifugal cicatricial alopecia
  • cicatricial alopecia ethnic hair
  • Hair loss
  • quality of life
  • scarring alopecia

ASJC Scopus subject areas

  • Dermatology


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