Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative

Mimi M. Kim, Ann Cheney, Anita Black, Roland J. Thorpe, Crystal Wiley Cene, Guarav J. Dave, Jennifer Schaal, Stefanie Vassar, Corrine Ruktanonchai, Leah Frerichs, Tiffany Young, Jennifer Jones, Jessica Burke, Deepthi Varma, Catherine Striley, Linda Cottler, Arleen Brown, Greer Sullivan, Giselle Corbie-Smith

Research output: Contribution to journalArticlepeer-review

Abstract

Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as “social capital.” Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.

Original languageEnglish (US)
Pages (from-to)180-192
Number of pages13
JournalEvaluation and the Health Professions
Volume43
Issue number3
DOIs
StatePublished - Sep 1 2020

Keywords

  • CTSA
  • community research partners
  • community-engaged research
  • translational science
  • trust

ASJC Scopus subject areas

  • Health Policy

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