Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Patricia P. Gilliam, Jonathan Ellen, Lori Leonard, Sara Kinsman, Cecilia M. Jevitt, Diane M. Straub

Research output: Contribution to journalArticle

Abstract

The transition process from pediatric to adult health care for adolescents with chronic diseases is always challenging and can be even more so for adolescents with HIV disease. The purpose of this study was to describe characteristics and current practices surrounding the transition of adolescents from the clinics of the Adolescent Trials Network for HIV/AIDS Interventions to adult medical care. This report focuses on the processes of transition, perceived barriers and facilitators, and anecdotal reports of successes and failures. Practice models used to assist adolescents during transition to adult medical care are described. Interviews were conducted with 19 key informants from 14 Adolescent Trials Network clinics. Findings revealed no consistent definition of " successful" transition, little consensus among the sites regarding specific elements of a transition program, and a lack of mechanisms to assess outcomes. Sites that viewed transition as a process rather than an event consistently described more structured program elements.

Original languageEnglish (US)
Pages (from-to)283-294
Number of pages12
JournalJournal of the Association of Nurses in AIDS Care
Volume22
Issue number4
DOIs
StatePublished - Jul 2011

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Acquired Immunodeficiency Syndrome
HIV
Transition to Adult Care
Transition Elements
Chronic Disease
Interviews
Pediatrics
Delivery of Health Care

Keywords

  • Adolescent
  • AIDS
  • Developmental
  • HIV
  • Transition

ASJC Scopus subject areas

  • Advanced and Specialized Nursing

Cite this

Transition of Adolescents With HIV to Adult Care : Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions. / Gilliam, Patricia P.; Ellen, Jonathan; Leonard, Lori; Kinsman, Sara; Jevitt, Cecilia M.; Straub, Diane M.

In: Journal of the Association of Nurses in AIDS Care, Vol. 22, No. 4, 07.2011, p. 283-294.

Research output: Contribution to journalArticle

Gilliam, Patricia P. ; Ellen, Jonathan ; Leonard, Lori ; Kinsman, Sara ; Jevitt, Cecilia M. ; Straub, Diane M. / Transition of Adolescents With HIV to Adult Care : Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions. In: Journal of the Association of Nurses in AIDS Care. 2011 ; Vol. 22, No. 4. pp. 283-294.
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