Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Patricia P. Gilliam; Jonathan M. Ellen; Lori Leonard; Sara Kinsman; Cecilia M. Jevitt; Diane M. Straub

doi:10.1016/j.jana.2010.04.003

Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Patricia P. Gilliam, Jonathan M. Ellen, Lori Leonard, Sara Kinsman, Cecilia M. Jevitt, Diane M. Straub

Research output: Contribution to journal › Article › peer-review

65 Scopus citations

Abstract

The transition process from pediatric to adult health care for adolescents with chronic diseases is always challenging and can be even more so for adolescents with HIV disease. The purpose of this study was to describe characteristics and current practices surrounding the transition of adolescents from the clinics of the Adolescent Trials Network for HIV/AIDS Interventions to adult medical care. This report focuses on the processes of transition, perceived barriers and facilitators, and anecdotal reports of successes and failures. Practice models used to assist adolescents during transition to adult medical care are described. Interviews were conducted with 19 key informants from 14 Adolescent Trials Network clinics. Findings revealed no consistent definition of " successful" transition, little consensus among the sites regarding specific elements of a transition program, and a lack of mechanisms to assess outcomes. Sites that viewed transition as a process rather than an event consistently described more structured program elements.

Original language	English (US)
Pages (from-to)	283-294
Number of pages	12
Journal	Journal of the Association of Nurses in AIDS Care
Volume	22
Issue number	4
DOIs	https://doi.org/10.1016/j.jana.2010.04.003
State	Published - Jul 2011
Externally published	Yes

Keywords

AIDS
Adolescent
Developmental
HIV
Transition

ASJC Scopus subject areas

Advanced and Specialized Nursing

Access to Document

10.1016/j.jana.2010.04.003

Cite this

Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions. / Gilliam, Patricia P.; Ellen, Jonathan M.; Leonard, Lori et al.
In: Journal of the Association of Nurses in AIDS Care, Vol. 22, No. 4, 07.2011, p. 283-294.

Research output: Contribution to journal › Article › peer-review

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abstract = "The transition process from pediatric to adult health care for adolescents with chronic diseases is always challenging and can be even more so for adolescents with HIV disease. The purpose of this study was to describe characteristics and current practices surrounding the transition of adolescents from the clinics of the Adolescent Trials Network for HIV/AIDS Interventions to adult medical care. This report focuses on the processes of transition, perceived barriers and facilitators, and anecdotal reports of successes and failures. Practice models used to assist adolescents during transition to adult medical care are described. Interviews were conducted with 19 key informants from 14 Adolescent Trials Network clinics. Findings revealed no consistent definition of {"} successful{"} transition, little consensus among the sites regarding specific elements of a transition program, and a lack of mechanisms to assess outcomes. Sites that viewed transition as a process rather than an event consistently described more structured program elements.",

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note = "Funding Information: The ATN for HIV/AIDS Interventions is a multicenter collaborative network funded by the NIH to study the HIV/AIDS epidemic in adolescents. Relevant leadership groups within the ATN and respective site leadership agreed to this research collaboration, and internal review board approval was obtained from the University of South Florida. Site representatives were recruited from eligible ATN clinic sites, and all eligible sites participated. Puerto Rico and Tulane clinic in New Orleans were considered ineligible to participate because of language and transcription problems in the former and severe disruption of services resulting from Hurricane Katrina in the latter. The principal investigator at each site was asked to identify one to three individuals who were considered the most knowledgeable and experienced in their clinic's transition program. This purposeful sample was then contacted for participation in the study. ",

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Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Abstract

Keywords

ASJC Scopus subject areas

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