TY - JOUR
T1 - Transforming challenges into opportunities
T2 - conducting health preference research during the COVID-19 pandemic and beyond
AU - Kaur, Manraj N.
AU - Skolasky, Richard L.
AU - Powell, Philip A.
AU - Xie, Feng
AU - Huang, I. Chan
AU - Kuspinar, Ayse
AU - O’Dwyer, John L.
AU - Cizik, Amy M.
AU - Rowen, Donna
N1 - Funding Information:
No funding was received for the preparation of this manuscript. Manraj N. Kaur is supported through the Canadian Institutes of Health Research’s Fellowship (2020–23).
Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer Nature Switzerland AG.
PY - 2022/4
Y1 - 2022/4
N2 - The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no “one size fits all” solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.
AB - The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no “one size fits all” solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.
KW - COVID-19
KW - Challenges
KW - Data collection
KW - Face-to-face administration
KW - Health preference research
KW - Online administration
KW - Pandemic
KW - Preference elicitation
KW - Vulnerable people
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U2 - 10.1007/s11136-021-03012-y
DO - 10.1007/s11136-021-03012-y
M3 - Comment/debate
C2 - 34661806
AN - SCOPUS:85117178343
VL - 31
SP - 1191
EP - 1198
JO - Quality of Life Research
JF - Quality of Life Research
SN - 0962-9343
IS - 4
ER -