Top Ten Tips Palliative Care Clinicians Should Know about Amyotrophic Lateral Sclerosis

Elyse A. Everett, Elizabeth Pedowitz, Samuel Maiser, Joss Cohen, Jessica Besbris, Ambereen K. Mehta, Luqi Chi, Christopher A. Jones

Research output: Contribution to journalArticlepeer-review

Abstract

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive and fatal neurodegenerative disorder with enormous palliative care (PC) needs that begin at the time of diagnosis. Although it is an uncommon disease, clinicians who work in PC or hospice are likely to encounter ALS somewhat frequently given the needs of patients with ALS with regard to psychosocial support, symptom management, advance care planning (ACP), caregiver support, and end-of-life care. As such, PC clinicians should be familiar with the basic principles of ALS symptoms, treatments, disease course, and issues around ACP. This article, written by a team of neurologists and PC physicians, seeks to provide PC clinicians with tips to improve their comfort and skills caring for patients with ALS and their families.

Original languageEnglish (US)
Pages (from-to)842-847
Number of pages6
JournalJournal of palliative medicine
Volume23
Issue number6
DOIs
StatePublished - Jun 2020
Externally publishedYes

Keywords

  • ALS
  • amyotrophic lateral sclerosis
  • hospice
  • palliative care
  • symptom control

ASJC Scopus subject areas

  • Nursing(all)
  • Anesthesiology and Pain Medicine

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