The use of medical records in research: What do patients want?

Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Research output: Contribution to journalArticlepeer-review

54 Scopus citations


Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.

Original languageEnglish (US)
Pages (from-to)429-433
Number of pages5
JournalJournal of Law, Medicine and Ethics
Issue number3
StatePublished - 2003

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health Policy


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