The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Shawn M. Bediako, Sophie Lanzkron, Marie Diener-West, Gladys Onojobi, Mary C. Beach, Carlton Haywood

Research output: Contribution to journalArticlepeer-review

Abstract

Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.

Original languageEnglish (US)
Pages (from-to)808-820
Number of pages13
JournalJournal of Health Psychology
Volume21
Issue number5
DOIs
StatePublished - May 2016

Keywords

  • disease severity
  • sickle cell
  • stigma
  • utilization

ASJC Scopus subject areas

  • Applied Psychology

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