The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Shawn M. Bediako; Sophie Lanzkron; Marie Diener-West; Gladys Onojobi; Mary C. Beach; Carlton Haywood

doi:10.1177/1359105314539530

The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Shawn M. Bediako, Sophie Lanzkron, Marie Diener-West, Gladys Onojobi, Mary C. Beach, Carlton Haywood

Research output: Contribution to journal › Article › peer-review

Abstract

Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.

Original language	English (US)
Pages (from-to)	808-820
Number of pages	13
Journal	Journal of Health Psychology
Volume	21
Issue number	5
DOIs	https://doi.org/10.1177/1359105314539530
State	Published - May 2016

Keywords

disease severity
sickle cell
stigma
utilization

ASJC Scopus subject areas

Applied Psychology

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The Measure of Sickle Cell Stigma : Initial findings from the Improving Patient Outcomes through Respect and Trust study. / Bediako, Shawn M.; Lanzkron, Sophie ; Diener-West, Marie; Onojobi, Gladys; Beach, Mary C.; Haywood, Carlton.

In: Journal of Health Psychology, Vol. 21, No. 5, 05.2016, p. 808-820.

Research output: Contribution to journal › Article › peer-review

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