The lived experience of spouses of patients with a left ventricular assist device before heart transplantation

Research output: Contribution to journalArticle

Abstract

• BACKGROUND: No publications describe the life experience of spouses who are designated caregivers of patients with a left ventricular assist device before transplantation. • OBJECTIVE: To explore what life is like for spouses serving as caregivers of patients with a left ventricular assist device before transplantation and to assess the meaning of such experience to them. • METHODS: This phenomenological study included 3 women 38 to 52 years old who were designated caregivers of patients with a left ventricular assist device while the patients were waiting at home for a heart transplant. • RESULTS: Three major themes emerged - emotional distress, determination, and optimism: a new lease on life. The identified themes were elucidated by 8 subthemes: guilt and realization of severity of illness, fear and anxiety, recognition that being a caregiver is an overwhelming experience and a burden, coping, living with hope, realization of loving relationship, adaptation to a new life, and joyful feeling. • CONCLUSION: The spouses who served as caregivers had strong emotions as they entered each stage of this life experience. The stages were characterized by the identified themes and subthemes, which otherwise might not have been revealed or might have remained private to the study participants. Critical care nurses should recognize and anticipate challenges for these stages of life experienced by the spouses as caregivers. Heightened awareness of this phenomenon will guide nurses in individualizing plans of care, educating patients and patients' families, and evaluating outcomes of care.

Original languageEnglish (US)
Pages (from-to)145-151
Number of pages7
JournalAmerican Journal of Critical Care
Volume14
Issue number2
StatePublished - Mar 1 2005
Externally publishedYes

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Heart-Assist Devices
Heart Transplantation
Spouses
Caregivers
Life Change Events
Hope
Emotions
Transplantation
Nurses
Guilt
Critical Care
Fear
Publications
Patient Care
Anxiety
Transplants

ASJC Scopus subject areas

  • Critical Care

Cite this

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abstract = "• BACKGROUND: No publications describe the life experience of spouses who are designated caregivers of patients with a left ventricular assist device before transplantation. • OBJECTIVE: To explore what life is like for spouses serving as caregivers of patients with a left ventricular assist device before transplantation and to assess the meaning of such experience to them. • METHODS: This phenomenological study included 3 women 38 to 52 years old who were designated caregivers of patients with a left ventricular assist device while the patients were waiting at home for a heart transplant. • RESULTS: Three major themes emerged - emotional distress, determination, and optimism: a new lease on life. The identified themes were elucidated by 8 subthemes: guilt and realization of severity of illness, fear and anxiety, recognition that being a caregiver is an overwhelming experience and a burden, coping, living with hope, realization of loving relationship, adaptation to a new life, and joyful feeling. • CONCLUSION: The spouses who served as caregivers had strong emotions as they entered each stage of this life experience. The stages were characterized by the identified themes and subthemes, which otherwise might not have been revealed or might have remained private to the study participants. Critical care nurses should recognize and anticipate challenges for these stages of life experienced by the spouses as caregivers. Heightened awareness of this phenomenon will guide nurses in individualizing plans of care, educating patients and patients' families, and evaluating outcomes of care.",
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