Abstract
Objective: The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care. Methods: Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status. Results: Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process. Conclusion: Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 141-154 |
| Number of pages | 14 |
| Journal | Journal of Pediatric Psychology |
| Volume | 36 |
| Issue number | 2 |
| DOIs | |
| State | Published - Mar 2011 |
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Keywords
- adolescents
- healthcare
- HIV/AIDS
- transition
- young adults
ASJC Scopus subject areas
- Developmental and Educational Psychology
- Pediatrics, Perinatology, and Child Health
Cite this
The HIV experience : Youth identified barriers for transitioning from pediatric to adult care. / Wiener, Lori S.; Kohrt, Brie Anne; Battles, Haven B.; Pao, Maryland.
In: Journal of Pediatric Psychology, Vol. 36, No. 2, 03.2011, p. 141-154.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - The HIV experience
T2 - Youth identified barriers for transitioning from pediatric to adult care
AU - Wiener, Lori S.
AU - Kohrt, Brie Anne
AU - Battles, Haven B.
AU - Pao, Maryland
PY - 2011/3
Y1 - 2011/3
N2 - Objective: The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care. Methods: Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status. Results: Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process. Conclusion: Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.
AB - Objective: The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care. Methods: Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status. Results: Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process. Conclusion: Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.
KW - adolescents
KW - healthcare
KW - HIV/AIDS
KW - transition
KW - young adults
UR - http://www.scopus.com/inward/record.url?scp=79952295472&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=79952295472&partnerID=8YFLogxK
U2 - 10.1093/jpepsy/jsp129
DO - 10.1093/jpepsy/jsp129
M3 - Article
C2 - 20040607
AN - SCOPUS:79952295472
VL - 36
SP - 141
EP - 154
JO - Journal of Pediatric Psychology
JF - Journal of Pediatric Psychology
SN - 0146-8693
IS - 2
ER -