TY - JOUR
T1 - The Global Network Maternal Newborn Health Registry
T2 - A multi-national, community-based registry of pregnancy outcomes
AU - Bose, Carl L.
AU - Bauserman, Melissa
AU - Goldenberg, Robert L.
AU - Goudar, Shivaprasad S.
AU - McClure, Elizabeth M.
AU - Pasha, Omrana
AU - Carlo, Waldemar A.
AU - Garces, Ana
AU - Moore, Janet L.
AU - Miodovnik, Menachem
AU - Koso-Thomas, Marion
N1 - Funding Information:
Argentina: Ana Maria Dominguez; Tania Lima Pérez; María José Pellegrini; Cristina Ganduglia; Rita Agüero; Diego Espinosa; Lucas Urquiza; Andrea Barea; Daniela Moreli; Belgaum, India: Ganapti V Lakkundi; Harsha S Patil; SM Chowdappanavar; Sanjay S Siddannavar; V N Kpasi; Satish P Malali; Ramesh Haller; Jagadish K Jingi; RS Balikaj; MB Rayar; Vinod D Gasti; Mahesh J Kumbar; Iranna I Kalli; Bhujabali D Yalagudri; N A Gotyal; Chan-drakanth Sutar; Sukanya Handage; Anil Salagare; Ashok S Kumbar; Salim A Mujawar; Laxmi B Herawade; B N PatIl; Sheetal Ingle; Ravasab Sankaje; Uday S Kudachi; Shahid Gadekai; Shivanand Mulakuri; Adivesh Munavalli; Daya-nand Shirur; Rajendra K Kilabanur; Sanjay S Doddamani; Santosh G Shettar; S V Melavanki; Shridhar S Pattar; Kusuma Y Magi; Vikas B Parwatikar; P M Itagi; K F Maya-chari; Venkanna Emmi; Basavraj S Madali; Vinayak Mhe-tre; Nagraj Khade; Tanaji Khade; Sachin Mastiholi; G S Kengapur; B B Avoji; Democratic Republic of Congo: Charles Kombi, Michel Kalonji; Kenya: Carolyne Chem-weno; Guatemala: Evelyn Morales, Marta Lidia Aguilar; Nagpur, India: Jayant Shamkuwar, Ravi Petkar, Shashank Ambhore, Atul Chopde, Nitesh Nikose, Atul Andelkar; Pakistan: Zahid Soomro; Amirzadi Khaskheli; Irfan Karim; Hussein Shaikh; Asma Amir; Samreen Gul; Rabia Samejo; Fahmida Gul; Zambia: Royce Shamapu; Rosemary Sotelli; Jessica Kapesa; Emmanuel Lwao; Lasco Ntanisha; Edwin Cheelo; Mavis Liteta; Raymond Ngwenya; Martha Katenga; Jean Mwanza; Shira Makwama ; Denis Kapamu-lomo ; Doreen Kadipa ; Carol Mubila ; Love Kasakula ; Sara Mukula ; Eness Sappi ; Mwazi Sikalenge ; Salome Lyanoonga ; Emilliy Muchimba The study was funded by grants (U01HD040636, U10HD078437, U10HD076461, U10HD076465, U10HD076457, U10HD078439, U10HD078438, and U10HD076474) from the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the US National Institutes of Health.
Funding Information:
This article has been published as part of Reproductive Health Volume 12 Supplement 2, 2015: Research reports from the NICHD Global Network for Women’s and Children’s Health Research Maternal and Newborn Health Registry. The full contents of the supplement are available online at http:// www.reproductive-health-journal.com/supplements/12/S2. Publication of this supplement was supported by grants from the Eunice Kennedy Shriver National Institute of Child Health and Human Development to RTI International.
Publisher Copyright:
© 2015 Bose et al; licensee BioMed Central Ltd.
PY - 2015/6/8
Y1 - 2015/6/8
N2 - Background: The Global Network for Women's and Children's Health Research (Global Network) supports and conducts clinical trials in resource-limited countries by pairing foreign and U.S. investigators, with the goal of evaluating low-cost, sustainable interventions to improve the health of women and children. Accurate reporting of births, stillbirths, neonatal deaths, maternal mortality, and measures of obstetric and neonatal care is critical to efforts to discover strategies for improving pregnancy outcomes in resource-limited settings. Because most of the sites in the Global Network have weak registration within their health care systems, the Global Network developed the Maternal Newborn Health Registry (MNHR), a prospective, population-based registry of pregnancies at the Global Network sites to provide precise data on health outcomes and measures of care. Methods: Pregnant women are enrolled in the MNHR if they reside in or receive healthcare in designated groups of communities within sites in the Global Network. For each woman, demographic, health characteristics and major outcomes of pregnancy are recorded. Data are recorded at enrollment, the time of delivery and at 42 days postpartum. Results: From 2010 through 2013 Global Network sites were located in Argentina, Guatemala, Belgaum and Nagpur, India, Pakistan, Kenya, and Zambia. During this period, 283,496 pregnant women were enrolled in the MNHR; this number represented 98.8% of all eligible women. Delivery data were collected for 98.8% of women and 42-day follow-up data for 98.4% of those enrolled. In this supplement, there are a series of manuscripts that use data gathered through the MNHR to report outcomes of these pregnancies. Conclusions: Developing public policy and improving public health in countries with poor perinatal outcomes is, in part, dependent upon understanding the outcome of every pregnancy. Because the worst pregnancy outcomes typically occur in countries with limited health registration systems and vital records, alternative registration systems may prove to be highly valuable in providing data. The MNHR, an international, multicenter, population-based registry, assesses pregnancy outcomes over time in support of efforts to develop improved perinatal healthcare in resource-limited areas. Study Registration: The Maternal Newborn Health Registry is registered at Clinicaltrials.gov (ID# NCT01073475).
AB - Background: The Global Network for Women's and Children's Health Research (Global Network) supports and conducts clinical trials in resource-limited countries by pairing foreign and U.S. investigators, with the goal of evaluating low-cost, sustainable interventions to improve the health of women and children. Accurate reporting of births, stillbirths, neonatal deaths, maternal mortality, and measures of obstetric and neonatal care is critical to efforts to discover strategies for improving pregnancy outcomes in resource-limited settings. Because most of the sites in the Global Network have weak registration within their health care systems, the Global Network developed the Maternal Newborn Health Registry (MNHR), a prospective, population-based registry of pregnancies at the Global Network sites to provide precise data on health outcomes and measures of care. Methods: Pregnant women are enrolled in the MNHR if they reside in or receive healthcare in designated groups of communities within sites in the Global Network. For each woman, demographic, health characteristics and major outcomes of pregnancy are recorded. Data are recorded at enrollment, the time of delivery and at 42 days postpartum. Results: From 2010 through 2013 Global Network sites were located in Argentina, Guatemala, Belgaum and Nagpur, India, Pakistan, Kenya, and Zambia. During this period, 283,496 pregnant women were enrolled in the MNHR; this number represented 98.8% of all eligible women. Delivery data were collected for 98.8% of women and 42-day follow-up data for 98.4% of those enrolled. In this supplement, there are a series of manuscripts that use data gathered through the MNHR to report outcomes of these pregnancies. Conclusions: Developing public policy and improving public health in countries with poor perinatal outcomes is, in part, dependent upon understanding the outcome of every pregnancy. Because the worst pregnancy outcomes typically occur in countries with limited health registration systems and vital records, alternative registration systems may prove to be highly valuable in providing data. The MNHR, an international, multicenter, population-based registry, assesses pregnancy outcomes over time in support of efforts to develop improved perinatal healthcare in resource-limited areas. Study Registration: The Maternal Newborn Health Registry is registered at Clinicaltrials.gov (ID# NCT01073475).
KW - Maternal mortality
KW - Neonatal mortality
KW - Perinatal mortality
KW - Registry
KW - Stillbirth
UR - http://www.scopus.com/inward/record.url?scp=84977582153&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84977582153&partnerID=8YFLogxK
U2 - 10.1186/1742-4755-12-S2-S1
DO - 10.1186/1742-4755-12-S2-S1
M3 - Article
C2 - 26063166
AN - SCOPUS:84977582153
SN - 1742-4755
VL - 12
JO - Reproductive health
JF - Reproductive health
IS - 2
M1 - S7
ER -