The Global academic research organization network: Data sharing to cure diseases and enable learning health systems

Masanori Fukushima, Christopher Austin, Norihiro Sato, Tatsuya Maruyama, Eileen Navarro, Mitra Rocca, Jacques Demotes, Melissa Haendel, Samuel L. Volchenboum, Matthew Cowperthwaite, Jonathan C. Silverstein, Chris Webb, Ida Sim, Marianne Chase, John Speakman, Erika Augustine, Daniel E Ford, Rebecca Kush

Research output: Contribution to journalArticle

Abstract

Introduction: Global data sharing is essential. This is the premise of the Academic Research Organization (ARO) Council, which was initiated in Japan in 2013 and has since been expanding throughout Asia and into Europe and the United States. The volume of data is growing exponentially, providing not only challenges but also the clear opportunity to understand and treat diseases in ways not previously considered. Harnessing the knowledge within the data in a successful way can provide researchers and clinicians with new ideas for therapies while avoiding repeats of failed experiments. This knowledge transfer from research into clinical care is at the heart of a learning health system. Methods: The ARO Council wishes to form a worldwide complementary system for the benefit of all patients and investigators, catalyzing more efficient and innovative medical research processes. Thus, they have organized Global ARO Network Workshops to bring interested parties together, focusing on the aspects necessary to make such a global effort successful. One such workshop was held in Austin, Texas, in November 2017. Representatives from Japan, Taiwan, Singapore, Europe, and the United States reported on their efforts to encourage data sharing and to use research to inform care through learning health systems. Results: This experience report summarizes presentations and discussions at the Global ARO Network Workshop held in November 2017 in Austin, TX, with representatives from Japan, Korea, Singapore, Taiwan, Europe, and the United States. Themes and recommendations to progress their efforts are explored. Standardization and harmonization are at the heart of these discussions to enable data sharing. In addition, the transformation of clinical research processes through disruptive innovation, while ensuring integrity and ethics, will be key to achieving the ARO Council goal to overcome diseases such that people not only live longer but also are healthier and happier as they age. Conclusions: The achievement of global learning health systems will require further exploration, consensus-building, funding aligned with incentives for data sharing, standardization, harmonization, and actions that support global interests for the benefit of patients.

Original languageEnglish (US)
Article numbere10073
JournalLearning Health Systems
Volume3
Issue number1
DOIs
StatePublished - Jan 1 2019

Fingerprint

Information Dissemination
Learning
Health
Research
Japan
Singapore
Taiwan
Education
Research Personnel
Korea
Ethics
Biomedical Research
Motivation
Consensus

Keywords

  • data sharing
  • global
  • harmonization
  • registry
  • standards

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Health Informatics
  • Health Information Management

Cite this

Fukushima, M., Austin, C., Sato, N., Maruyama, T., Navarro, E., Rocca, M., ... Kush, R. (2019). The Global academic research organization network: Data sharing to cure diseases and enable learning health systems. Learning Health Systems, 3(1), [e10073]. https://doi.org/10.1002/lrh2.10073

The Global academic research organization network : Data sharing to cure diseases and enable learning health systems. / Fukushima, Masanori; Austin, Christopher; Sato, Norihiro; Maruyama, Tatsuya; Navarro, Eileen; Rocca, Mitra; Demotes, Jacques; Haendel, Melissa; Volchenboum, Samuel L.; Cowperthwaite, Matthew; Silverstein, Jonathan C.; Webb, Chris; Sim, Ida; Chase, Marianne; Speakman, John; Augustine, Erika; Ford, Daniel E; Kush, Rebecca.

In: Learning Health Systems, Vol. 3, No. 1, e10073, 01.01.2019.

Research output: Contribution to journalArticle

Fukushima, M, Austin, C, Sato, N, Maruyama, T, Navarro, E, Rocca, M, Demotes, J, Haendel, M, Volchenboum, SL, Cowperthwaite, M, Silverstein, JC, Webb, C, Sim, I, Chase, M, Speakman, J, Augustine, E, Ford, DE & Kush, R 2019, 'The Global academic research organization network: Data sharing to cure diseases and enable learning health systems', Learning Health Systems, vol. 3, no. 1, e10073. https://doi.org/10.1002/lrh2.10073
Fukushima, Masanori ; Austin, Christopher ; Sato, Norihiro ; Maruyama, Tatsuya ; Navarro, Eileen ; Rocca, Mitra ; Demotes, Jacques ; Haendel, Melissa ; Volchenboum, Samuel L. ; Cowperthwaite, Matthew ; Silverstein, Jonathan C. ; Webb, Chris ; Sim, Ida ; Chase, Marianne ; Speakman, John ; Augustine, Erika ; Ford, Daniel E ; Kush, Rebecca. / The Global academic research organization network : Data sharing to cure diseases and enable learning health systems. In: Learning Health Systems. 2019 ; Vol. 3, No. 1.
@article{f47c4cd353984d0aa345fe17dc9069dc,
title = "The Global academic research organization network: Data sharing to cure diseases and enable learning health systems",
abstract = "Introduction: Global data sharing is essential. This is the premise of the Academic Research Organization (ARO) Council, which was initiated in Japan in 2013 and has since been expanding throughout Asia and into Europe and the United States. The volume of data is growing exponentially, providing not only challenges but also the clear opportunity to understand and treat diseases in ways not previously considered. Harnessing the knowledge within the data in a successful way can provide researchers and clinicians with new ideas for therapies while avoiding repeats of failed experiments. This knowledge transfer from research into clinical care is at the heart of a learning health system. Methods: The ARO Council wishes to form a worldwide complementary system for the benefit of all patients and investigators, catalyzing more efficient and innovative medical research processes. Thus, they have organized Global ARO Network Workshops to bring interested parties together, focusing on the aspects necessary to make such a global effort successful. One such workshop was held in Austin, Texas, in November 2017. Representatives from Japan, Taiwan, Singapore, Europe, and the United States reported on their efforts to encourage data sharing and to use research to inform care through learning health systems. Results: This experience report summarizes presentations and discussions at the Global ARO Network Workshop held in November 2017 in Austin, TX, with representatives from Japan, Korea, Singapore, Taiwan, Europe, and the United States. Themes and recommendations to progress their efforts are explored. Standardization and harmonization are at the heart of these discussions to enable data sharing. In addition, the transformation of clinical research processes through disruptive innovation, while ensuring integrity and ethics, will be key to achieving the ARO Council goal to overcome diseases such that people not only live longer but also are healthier and happier as they age. Conclusions: The achievement of global learning health systems will require further exploration, consensus-building, funding aligned with incentives for data sharing, standardization, harmonization, and actions that support global interests for the benefit of patients.",
keywords = "data sharing, global, harmonization, registry, standards",
author = "Masanori Fukushima and Christopher Austin and Norihiro Sato and Tatsuya Maruyama and Eileen Navarro and Mitra Rocca and Jacques Demotes and Melissa Haendel and Volchenboum, {Samuel L.} and Matthew Cowperthwaite and Silverstein, {Jonathan C.} and Chris Webb and Ida Sim and Marianne Chase and John Speakman and Erika Augustine and Ford, {Daniel E} and Rebecca Kush",
year = "2019",
month = "1",
day = "1",
doi = "10.1002/lrh2.10073",
language = "English (US)",
volume = "3",
journal = "Learning Health Systems",
issn = "2379-6146",
publisher = "John Wiley and Sons Inc.",
number = "1",

}

TY - JOUR

T1 - The Global academic research organization network

T2 - Data sharing to cure diseases and enable learning health systems

AU - Fukushima, Masanori

AU - Austin, Christopher

AU - Sato, Norihiro

AU - Maruyama, Tatsuya

AU - Navarro, Eileen

AU - Rocca, Mitra

AU - Demotes, Jacques

AU - Haendel, Melissa

AU - Volchenboum, Samuel L.

AU - Cowperthwaite, Matthew

AU - Silverstein, Jonathan C.

AU - Webb, Chris

AU - Sim, Ida

AU - Chase, Marianne

AU - Speakman, John

AU - Augustine, Erika

AU - Ford, Daniel E

AU - Kush, Rebecca

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Introduction: Global data sharing is essential. This is the premise of the Academic Research Organization (ARO) Council, which was initiated in Japan in 2013 and has since been expanding throughout Asia and into Europe and the United States. The volume of data is growing exponentially, providing not only challenges but also the clear opportunity to understand and treat diseases in ways not previously considered. Harnessing the knowledge within the data in a successful way can provide researchers and clinicians with new ideas for therapies while avoiding repeats of failed experiments. This knowledge transfer from research into clinical care is at the heart of a learning health system. Methods: The ARO Council wishes to form a worldwide complementary system for the benefit of all patients and investigators, catalyzing more efficient and innovative medical research processes. Thus, they have organized Global ARO Network Workshops to bring interested parties together, focusing on the aspects necessary to make such a global effort successful. One such workshop was held in Austin, Texas, in November 2017. Representatives from Japan, Taiwan, Singapore, Europe, and the United States reported on their efforts to encourage data sharing and to use research to inform care through learning health systems. Results: This experience report summarizes presentations and discussions at the Global ARO Network Workshop held in November 2017 in Austin, TX, with representatives from Japan, Korea, Singapore, Taiwan, Europe, and the United States. Themes and recommendations to progress their efforts are explored. Standardization and harmonization are at the heart of these discussions to enable data sharing. In addition, the transformation of clinical research processes through disruptive innovation, while ensuring integrity and ethics, will be key to achieving the ARO Council goal to overcome diseases such that people not only live longer but also are healthier and happier as they age. Conclusions: The achievement of global learning health systems will require further exploration, consensus-building, funding aligned with incentives for data sharing, standardization, harmonization, and actions that support global interests for the benefit of patients.

AB - Introduction: Global data sharing is essential. This is the premise of the Academic Research Organization (ARO) Council, which was initiated in Japan in 2013 and has since been expanding throughout Asia and into Europe and the United States. The volume of data is growing exponentially, providing not only challenges but also the clear opportunity to understand and treat diseases in ways not previously considered. Harnessing the knowledge within the data in a successful way can provide researchers and clinicians with new ideas for therapies while avoiding repeats of failed experiments. This knowledge transfer from research into clinical care is at the heart of a learning health system. Methods: The ARO Council wishes to form a worldwide complementary system for the benefit of all patients and investigators, catalyzing more efficient and innovative medical research processes. Thus, they have organized Global ARO Network Workshops to bring interested parties together, focusing on the aspects necessary to make such a global effort successful. One such workshop was held in Austin, Texas, in November 2017. Representatives from Japan, Taiwan, Singapore, Europe, and the United States reported on their efforts to encourage data sharing and to use research to inform care through learning health systems. Results: This experience report summarizes presentations and discussions at the Global ARO Network Workshop held in November 2017 in Austin, TX, with representatives from Japan, Korea, Singapore, Taiwan, Europe, and the United States. Themes and recommendations to progress their efforts are explored. Standardization and harmonization are at the heart of these discussions to enable data sharing. In addition, the transformation of clinical research processes through disruptive innovation, while ensuring integrity and ethics, will be key to achieving the ARO Council goal to overcome diseases such that people not only live longer but also are healthier and happier as they age. Conclusions: The achievement of global learning health systems will require further exploration, consensus-building, funding aligned with incentives for data sharing, standardization, harmonization, and actions that support global interests for the benefit of patients.

KW - data sharing

KW - global

KW - harmonization

KW - registry

KW - standards

UR - http://www.scopus.com/inward/record.url?scp=85063047004&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85063047004&partnerID=8YFLogxK

U2 - 10.1002/lrh2.10073

DO - 10.1002/lrh2.10073

M3 - Article

C2 - 31245596

AN - SCOPUS:85063047004

VL - 3

JO - Learning Health Systems

JF - Learning Health Systems

SN - 2379-6146

IS - 1

M1 - e10073

ER -