The Family Value of Information, Community Support, and Experience Study: Rationale, Design, and Methods of a "family-Centered" Research Study

Gloria M. Reeves, Heidi J. Wehring, Kathleen M. Connors, Kristin Bussell, Jason Schiffman, Deborah R. Medoff, Thomas Tsuji, Jane Walker, Alicia Brown, Danielle Strobeck, Tammy Clough, Caitlin B. Rush, Mark A Riddle, Raymond C. Love, Albert Anthony Zachik, Kimberly Hoagwood, S. Serene Olin, Sharon Stephan, Nana Okuzawa, Sarah EdwardsClaudia Baquet, Susan DosReis

Research output: Contribution to journalArticle

Abstract

The Patient Protection and Affordable Care Act focuses on improving consumer engagement and patient-centered care. This article describes the design and rationale of a study targeting family engagement in pediatric mental health services. The study is a 90-day randomized trial of a telephone-delivered Family Navigator services versus usual care for parents of Medicaid-insured youth younger than 13 years with serious mental illness. Youth are identified through a pediatric antipsychotic medication preauthorization program. Family Navigators offer peer support to empower and engage parents in their child's recovery. Outcomes include parent report of empowerment, social support, satisfaction with child mental health services, and child functioning as well as claims-based measures of psychotherapy service utilization and antipsychotic medication dosage. The focus on "family-centered" care in this study is strongly supported by the active role of consumers in study design and implementation.

Original languageEnglish (US)
Pages (from-to)896-900
Number of pages5
JournalJournal of Nervous and Mental Disease
Volume203
Issue number12
DOIs
StatePublished - Dec 1 2015

Fingerprint

Mental Health Services
Antipsychotic Agents
Parents
Patient Protection and Affordable Care Act
Child Health Services
Pediatrics
Patient-Centered Care
Medicaid
Telephone
Psychotherapy
Social Support
Power (Psychology)

Keywords

  • child mental health services
  • Patient navigator
  • patient-centered care

ASJC Scopus subject areas

  • Psychiatry and Mental health

Cite this

The Family Value of Information, Community Support, and Experience Study : Rationale, Design, and Methods of a "family-Centered" Research Study. / Reeves, Gloria M.; Wehring, Heidi J.; Connors, Kathleen M.; Bussell, Kristin; Schiffman, Jason; Medoff, Deborah R.; Tsuji, Thomas; Walker, Jane; Brown, Alicia; Strobeck, Danielle; Clough, Tammy; Rush, Caitlin B.; Riddle, Mark A; Love, Raymond C.; Zachik, Albert Anthony; Hoagwood, Kimberly; Olin, S. Serene; Stephan, Sharon; Okuzawa, Nana; Edwards, Sarah; Baquet, Claudia; DosReis, Susan.

In: Journal of Nervous and Mental Disease, Vol. 203, No. 12, 01.12.2015, p. 896-900.

Research output: Contribution to journalArticle

Reeves, GM, Wehring, HJ, Connors, KM, Bussell, K, Schiffman, J, Medoff, DR, Tsuji, T, Walker, J, Brown, A, Strobeck, D, Clough, T, Rush, CB, Riddle, MA, Love, RC, Zachik, AA, Hoagwood, K, Olin, SS, Stephan, S, Okuzawa, N, Edwards, S, Baquet, C & DosReis, S 2015, 'The Family Value of Information, Community Support, and Experience Study: Rationale, Design, and Methods of a "family-Centered" Research Study', Journal of Nervous and Mental Disease, vol. 203, no. 12, pp. 896-900. https://doi.org/10.1097/NMD.0000000000000393
Reeves, Gloria M. ; Wehring, Heidi J. ; Connors, Kathleen M. ; Bussell, Kristin ; Schiffman, Jason ; Medoff, Deborah R. ; Tsuji, Thomas ; Walker, Jane ; Brown, Alicia ; Strobeck, Danielle ; Clough, Tammy ; Rush, Caitlin B. ; Riddle, Mark A ; Love, Raymond C. ; Zachik, Albert Anthony ; Hoagwood, Kimberly ; Olin, S. Serene ; Stephan, Sharon ; Okuzawa, Nana ; Edwards, Sarah ; Baquet, Claudia ; DosReis, Susan. / The Family Value of Information, Community Support, and Experience Study : Rationale, Design, and Methods of a "family-Centered" Research Study. In: Journal of Nervous and Mental Disease. 2015 ; Vol. 203, No. 12. pp. 896-900.
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