The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic

Aravindhan Veerapandiyan, Kathryn R. Wagner, Susan Apkon, Craig M. McDonald, Katherine D. Mathews, Julie A. Parsons, Brenda L. Wong, Katy Eichinger, Perry B. Shieh, Russell J. Butterfield, Vamshi K. Rao, Edward C. Smith, Crystal M. Proud, Anne M. Connolly, Emma Ciafaloni

Research output: Contribution to journalArticle

Abstract

The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.

Original languageEnglish (US)
Pages (from-to)41-45
Number of pages5
JournalMuscle and Nerve
Volume62
Issue number1
DOIs
StatePublished - Jul 1 2020

Keywords

  • BMD
  • COVID-19
  • DMD
  • consensus
  • muscular dystrophy
  • recommendations

ASJC Scopus subject areas

  • Physiology
  • Clinical Neurology
  • Cellular and Molecular Neuroscience
  • Physiology (medical)

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  • Cite this

    Veerapandiyan, A., Wagner, K. R., Apkon, S., McDonald, C. M., Mathews, K. D., Parsons, J. A., Wong, B. L., Eichinger, K., Shieh, P. B., Butterfield, R. J., Rao, V. K., Smith, E. C., Proud, C. M., Connolly, A. M., & Ciafaloni, E. (2020). The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle and Nerve, 62(1), 41-45. https://doi.org/10.1002/mus.26902