SANKOFA: A multisite collaboration on paediatric HIV disclosure in Ghana

Nancy Reynolds, Angela Ofori-Atta, Margaret Lartey, Lorna Renner, Sampson Antwi, Anthony Enimil, Ann Christine Catlin, Sumudinie Fernando, Tassos C. Kyriakides, Elijah Paintsil

Research output: Contribution to journalArticle

Abstract

With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment. Yet many of these children, especially preadolescents, do not know they are HIVinfected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.

Original languageEnglish (US)
Pages (from-to)S35-S45
JournalAIDS
Volume29
DOIs
StatePublished - Jun 1 2015
Externally publishedYes

Fingerprint

Ghana
Disclosure
HIV
Pediatrics
Caregivers
Information Systems
Chronic Disease
Therapeutics

Keywords

  • Clinical trial
  • Disclosure
  • Ghana
  • HIV
  • Intervention
  • Paediatric

ASJC Scopus subject areas

  • Immunology and Allergy
  • Immunology
  • Infectious Diseases

Cite this

Reynolds, N., Ofori-Atta, A., Lartey, M., Renner, L., Antwi, S., Enimil, A., ... Paintsil, E. (2015). SANKOFA: A multisite collaboration on paediatric HIV disclosure in Ghana. AIDS, 29, S35-S45. https://doi.org/10.1097/QAD.0000000000000725

SANKOFA : A multisite collaboration on paediatric HIV disclosure in Ghana. / Reynolds, Nancy; Ofori-Atta, Angela; Lartey, Margaret; Renner, Lorna; Antwi, Sampson; Enimil, Anthony; Catlin, Ann Christine; Fernando, Sumudinie; Kyriakides, Tassos C.; Paintsil, Elijah.

In: AIDS, Vol. 29, 01.06.2015, p. S35-S45.

Research output: Contribution to journalArticle

Reynolds, N, Ofori-Atta, A, Lartey, M, Renner, L, Antwi, S, Enimil, A, Catlin, AC, Fernando, S, Kyriakides, TC & Paintsil, E 2015, 'SANKOFA: A multisite collaboration on paediatric HIV disclosure in Ghana', AIDS, vol. 29, pp. S35-S45. https://doi.org/10.1097/QAD.0000000000000725
Reynolds N, Ofori-Atta A, Lartey M, Renner L, Antwi S, Enimil A et al. SANKOFA: A multisite collaboration on paediatric HIV disclosure in Ghana. AIDS. 2015 Jun 1;29:S35-S45. https://doi.org/10.1097/QAD.0000000000000725
Reynolds, Nancy ; Ofori-Atta, Angela ; Lartey, Margaret ; Renner, Lorna ; Antwi, Sampson ; Enimil, Anthony ; Catlin, Ann Christine ; Fernando, Sumudinie ; Kyriakides, Tassos C. ; Paintsil, Elijah. / SANKOFA : A multisite collaboration on paediatric HIV disclosure in Ghana. In: AIDS. 2015 ; Vol. 29. pp. S35-S45.
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