TY - JOUR
T1 - SANKOFA
T2 - A multisite collaboration on paediatric HIV disclosure in Ghana
AU - Reynolds, Nancy R.
AU - Ofori-Atta, Angela
AU - Lartey, Margaret
AU - Renner, Lorna
AU - Antwi, Sampson
AU - Enimil, Anthony
AU - Catlin, Ann Christine
AU - Fernando, Sumudinie
AU - Kyriakides, Tassos C.
AU - Paintsil, Elijah
N1 - Funding Information:
Funding for this study was provided by National Institutes of Health (NIH), Eunice Kennedy Shriver National Institute of Child Health & Human Development (R01 HD074252).
Funding Information:
This study was made possible by a grant from NIH/ NICHD (R01HD074253). The content of the study is solely the responsibility of the authors and does not necessarily represent the official view of NIH.
Publisher Copyright:
© Copyright 2015 Wolters Kluwer Health, Inc. All rights reserved.
PY - 2015/6
Y1 - 2015/6
N2 - With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment. Yet many of these children, especially preadolescents, do not know they are HIVinfected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.
AB - With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment. Yet many of these children, especially preadolescents, do not know they are HIVinfected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.
KW - Clinical trial
KW - Disclosure
KW - Ghana
KW - HIV
KW - Intervention
KW - Paediatric
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U2 - 10.1097/QAD.0000000000000725
DO - 10.1097/QAD.0000000000000725
M3 - Article
C2 - 26049537
AN - SCOPUS:84988735845
SN - 0269-9370
VL - 29
SP - S35-S45
JO - AIDS
JF - AIDS
ER -