TY - JOUR
T1 - Retention strategies and factors associated with missed visits among low income women at increased risk of HIV acquisition in the US (HPTN 064)
AU - Haley, Danielle F.
AU - Lucas, Jonathan
AU - Golin, Carol E.
AU - Wang, Jing
AU - Hughes, James P.
AU - Emel, Lynda
AU - El-Sadr, Wafaa
AU - Frew, Paula M.
AU - Justman, Jessica
AU - Adimora, Adaora A.
AU - Watson, Christopher Chauncey
AU - Mannheimer, Sharon
AU - Rompalo, Anne
AU - Soto-Torres, Lydia
AU - Tims-Cook, Zandraetta
AU - Carter, Yvonne
AU - Hodder, Sally L.
PY - 2014/4/1
Y1 - 2014/4/1
N2 - Women at high-risk for HIV acquisition often face challenges that hinder their retention in HIV prevention trials. These same challenges may contribute to missed clinical care visits among HIV-infected women. This article, informed by the Gelberg-Andersen Behavioral Model for Vulnerable Populations, identifies factors associated with missed study visits and describes the multifaceted retention strategies used by study sites. HPTN 064 was a multisite, longitudinal HIV seroincidence study in 10 US communities. Eligible women were aged 18-44 years, resided in a census tract/zipcode with high poverty and HIV prevalence, and self-reported ≥1 personal or sex partner behavior related to HIV acquisition. Multivariate analyses of predisposing (e.g., substance use) and enabling (e.g., unmet health care needs) characteristics, and study attributes (i.e., recruitment venue, time of enrollment) identified factors associated with missed study visits. Retention strategies included: community engagement; interpersonal relationship building; reduction of external barriers; staff capacity building; and external tracing. Visit completion was 93% and 94% at 6 and 12 months. Unstable housing and later date of enrollment were associated with increased likelihood of missed study visits. Black race, recruitment from an outdoor venue, and financial responsibility for children were associated with greater likelihood of attendance. Multifaceted retention strategies may reduce missed study visits. Knowledge of factors associated with missed visits may help to focus efforts.
AB - Women at high-risk for HIV acquisition often face challenges that hinder their retention in HIV prevention trials. These same challenges may contribute to missed clinical care visits among HIV-infected women. This article, informed by the Gelberg-Andersen Behavioral Model for Vulnerable Populations, identifies factors associated with missed study visits and describes the multifaceted retention strategies used by study sites. HPTN 064 was a multisite, longitudinal HIV seroincidence study in 10 US communities. Eligible women were aged 18-44 years, resided in a census tract/zipcode with high poverty and HIV prevalence, and self-reported ≥1 personal or sex partner behavior related to HIV acquisition. Multivariate analyses of predisposing (e.g., substance use) and enabling (e.g., unmet health care needs) characteristics, and study attributes (i.e., recruitment venue, time of enrollment) identified factors associated with missed study visits. Retention strategies included: community engagement; interpersonal relationship building; reduction of external barriers; staff capacity building; and external tracing. Visit completion was 93% and 94% at 6 and 12 months. Unstable housing and later date of enrollment were associated with increased likelihood of missed study visits. Black race, recruitment from an outdoor venue, and financial responsibility for children were associated with greater likelihood of attendance. Multifaceted retention strategies may reduce missed study visits. Knowledge of factors associated with missed visits may help to focus efforts.
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U2 - 10.1089/apc.2013.0366
DO - 10.1089/apc.2013.0366
M3 - Article
C2 - 24697160
AN - SCOPUS:84898743985
SN - 1087-2914
VL - 28
SP - 206
EP - 217
JO - AIDS patient care and STDs
JF - AIDS patient care and STDs
IS - 4
ER -