RESEARCH NEEDS AND THE RIGHT TO PRIVACY AND CONFIDENTIALITY.

Leon Gordis

Research output: Contribution to conferencePaper

Abstract

An important challenge in medical and epidemiologic studies is to protect the privacy of human research subjects and the confidentiality of the data they provide and at the same time facilitate the conduct of legitimate research activities which are critical for preventing disease and advancing the health of the community. In epidemiologic investigations medical records are an invaluable source of information. Such records are essential in these investigations and the information they contain must be available in individually identifiable form during the time the study is being carried out. Any requirement that prior patient consent be required before access to medical records is permitted would make most studies impossible. It is also important that redisclosures of information be permitted to legitimate investigators as long as appropriate safeguards are in force. At the present time an elaborate system exists for protecting the privacy and confidentiality of research subjects and their information. Several recommendations are made for further improvement in these safeguards.

Original languageEnglish (US)
Pages382-384
Number of pages3
StatePublished - Jan 1 1979
EventAnnu Symp on Comput Appl in Med Care, 3rd, Proc - Washington, DC, USA
Duration: Oct 14 1979Oct 17 1979

Other

OtherAnnu Symp on Comput Appl in Med Care, 3rd, Proc
CityWashington, DC, USA
Period10/14/7910/17/79

ASJC Scopus subject areas

  • Engineering(all)

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  • Cite this

    Gordis, L. (1979). RESEARCH NEEDS AND THE RIGHT TO PRIVACY AND CONFIDENTIALITY.. 382-384. Paper presented at Annu Symp on Comput Appl in Med Care, 3rd, Proc, Washington, DC, USA, .