TY - JOUR
T1 - Research information knowledge, perceived adequacy, and understanding in cancer clinical trial participants
AU - Biedrzycki, Barbara A.
PY - 2011/7/1
Y1 - 2011/7/1
N2 - Purpose/Objectives: To describe the adequacy of research information among people with cancer at the time they accept or decline participation in a cancer clinical trial. Design: Cross-sectional, descriptive. Setting: An urban, academic, National Cancer Institute-designated comprehensive cancer center. Sample: 197 patients with advanced gastrointestinal cancer. Methods: Mailed survey; self-reported data. Main Research Variables: Adequacy of research information (actual knowledge, perceived adequacy of information, and perceived understanding), cancer clinical trial participation, and satisfaction with the decision to participate. Findings: Most respondents (88%) perceived themselves as having adequate information to make an informed decision regarding cancer clinical trial participation. In addition, 35% demonstrated adequate knowledge of basic clinical research. Conclusions: Patients decide to accept or decline cancer clinical trials without having adequate knowledge. Implications for Nursing: Nurses have an important role in educating patients regarding cancer clinical trials. The ideal teachable moment may not occur at the time of diagnosis; other less stressful opportunities may present when the patient is more receptive.
AB - Purpose/Objectives: To describe the adequacy of research information among people with cancer at the time they accept or decline participation in a cancer clinical trial. Design: Cross-sectional, descriptive. Setting: An urban, academic, National Cancer Institute-designated comprehensive cancer center. Sample: 197 patients with advanced gastrointestinal cancer. Methods: Mailed survey; self-reported data. Main Research Variables: Adequacy of research information (actual knowledge, perceived adequacy of information, and perceived understanding), cancer clinical trial participation, and satisfaction with the decision to participate. Findings: Most respondents (88%) perceived themselves as having adequate information to make an informed decision regarding cancer clinical trial participation. In addition, 35% demonstrated adequate knowledge of basic clinical research. Conclusions: Patients decide to accept or decline cancer clinical trials without having adequate knowledge. Implications for Nursing: Nurses have an important role in educating patients regarding cancer clinical trials. The ideal teachable moment may not occur at the time of diagnosis; other less stressful opportunities may present when the patient is more receptive.
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U2 - 10.1188/11.ONF.E291-E296
DO - 10.1188/11.ONF.E291-E296
M3 - Article
C2 - 21708524
AN - SCOPUS:79959821673
SN - 0190-535X
VL - 38
SP - E291-E296
JO - Oncology nursing forum
JF - Oncology nursing forum
IS - 4
ER -