Research information knowledge, perceived adequacy, and understanding in cancer clinical trial participants

Barbara A. Biedrzycki

Research output: Contribution to journalArticle

Abstract

Purpose/Objectives: To describe the adequacy of research information among people with cancer at the time they accept or decline participation in a cancer clinical trial. Design: Cross-sectional, descriptive. Setting: An urban, academic, National Cancer Institute-designated comprehensive cancer center. Sample: 197 patients with advanced gastrointestinal cancer. Methods: Mailed survey; self-reported data. Main Research Variables: Adequacy of research information (actual knowledge, perceived adequacy of information, and perceived understanding), cancer clinical trial participation, and satisfaction with the decision to participate. Findings: Most respondents (88%) perceived themselves as having adequate information to make an informed decision regarding cancer clinical trial participation. In addition, 35% demonstrated adequate knowledge of basic clinical research. Conclusions: Patients decide to accept or decline cancer clinical trials without having adequate knowledge. Implications for Nursing: Nurses have an important role in educating patients regarding cancer clinical trials. The ideal teachable moment may not occur at the time of diagnosis; other less stressful opportunities may present when the patient is more receptive.

Original languageEnglish (US)
Pages (from-to)E291-E296
JournalOncology nursing forum
Volume38
Issue number4
DOIs
StatePublished - Jul 1 2011

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ASJC Scopus subject areas

  • Oncology(nursing)

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