Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis

Gazi F. Azad, Emily Dillon, Julie Feuerstein, Luke Kalb, Jason Neely, Rebecca Landa

Research output: Contribution to journalArticlepeer-review

Abstract

We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5–17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients.

Original languageEnglish (US)
Pages (from-to)1269-1280
Number of pages12
JournalJournal of Autism and Developmental Disorders
Volume50
Issue number4
DOIs
StatePublished - Apr 1 2020

Keywords

  • Autism
  • Autism spectrum disorder
  • Clinical services
  • Quality of life

ASJC Scopus subject areas

  • Developmental and Educational Psychology

Fingerprint Dive into the research topics of 'Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis'. Together they form a unique fingerprint.

Cite this