Quality of life and psychosocial well-being among children living with HIV at a care home in Southern India

Tess Lang, Elsa Heylen, Sheeja Perumpil, Anita Shet, Mathew Perumpil, Wayne Steward, Emily Shamban, Maria L. Ekstrand

Research output: Contribution to journalArticlepeer-review

Abstract

This study was designed to evaluate the quality of life (QOL) of children living with HIV at an institutional care home in Bangalore, India. The Sneha Care Home is a unique residence that provides educational and community support with a focus on physical, nutritional, medical, and psychological care for orphans and vulnerable children. Cross-sectional health measures and interview data were collected from 97 residents including 52 boys and 45 girls between 5 and 12 years of age (mean age = 9). QOL was measured with the Pediatric Quality of Life 4.0 (PedsQL) Inventory. Caregivers perceived children to have an overall higher QOL than was self-reported by children (total score 83 vs. 78). Our findings indicated self-reported QOL decreased with age of the child, while caregiver-reported QOL increased with age, suggesting a need to ensure greater psychological support for older children. Physical measures showed the children’s clinical severity of disease remained well controlled living in this residential, values-based care home.

Original languageEnglish (US)
Pages (from-to)345-352
Number of pages8
JournalVulnerable Children and Youth Studies
Volume9
Issue number4
DOIs
StatePublished - Oct 1 2014
Externally publishedYes

Keywords

  • HIV
  • India
  • children
  • orphans
  • quality of life

ASJC Scopus subject areas

  • Health(social science)
  • Developmental and Educational Psychology
  • Sociology and Political Science

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