TY - JOUR
T1 - Public education materials about Vascular Composite Allotransplantation and donation in the United States
T2 - Current scope and limitations
AU - Van Pilsum Rasmussen, Sarah E.
AU - Uriarte, Jefferson
AU - Anderson, Naomi
AU - Doby, Brianna
AU - Ferzola, Alexander
AU - Sung, Hannah
AU - Cooney, Carisa
AU - Brandacher, Gerald
AU - Gordon, Elisa
AU - Segev, Dorry L.
AU - Henderson, Macey L.
N1 - Funding Information:
This work was supported by grant number RT170093 from the Department of Defense (PIs: Henderson, Gordon, Brandacher). The analyses described here are the responsibility of the authors alone and do not necessarily reflect the views or policies of the Department of Health and Human Services, the Department of Defense, nor does mention of trade names, commercial products or organizations imply endorsement by the US Government.
Funding Information:
This work was supported by grant number RT170093 from the Department of Defense (PIs: Henderson, Gordon, Brandacher). The analyses described here are the responsibility of the authors alone and do not necessarily reflect the views or policies of the Department of Health and Human Services, the Department of Defense, nor does mention of trade names, commercial products or organizations imply endorsement by the US Government.
Publisher Copyright:
© 2020 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd
PY - 2020/11
Y1 - 2020/11
N2 - As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.
AB - As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.
KW - Vascular Composite Allotransplantation
KW - content analysis
KW - education
KW - reconstructive transplantation
KW - vascular composite allograft
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U2 - 10.1111/ctr.14066
DO - 10.1111/ctr.14066
M3 - Article
C2 - 32810365
AN - SCOPUS:85092101876
SN - 0902-0063
VL - 34
JO - Clinical Transplantation
JF - Clinical Transplantation
IS - 11
M1 - e14066
ER -