Abstract
Background. Adults with sickle cell disease (SCD) have often reported difficulties obtaining care during vaso-occlusive crisis (VOC) in qualitative studies. Methods. We measured the experiences of 45 SCD patients who received in-hospital care for VOC using the Picker Patient Experience Questionnaire (PPE-15), and used the one sample binomial test to compare with national norms. Results. Most SCD patients reported that they were insufficiently involved in decisions (86%), staff gave conflicting information (64%), it wasn't easy to find someone to discuss concerns (61%), doctors' answers to questions were not clear (58%), nurses' answers to questions were not clear (56%), doctors did not always discuss fears and anxieties (53%), and nurses did not always discuss fears and anxieties (52%). A greater percentage of SCD patients than the U.S. sample in 9 of 12 areas reported problems. Conclusions. Further research is needed to determine the consequences of and potential interventions to improve these poor experiences.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1114-1123 |
| Number of pages | 10 |
| Journal | Journal of health care for the poor and underserved |
| Volume | 21 |
| Issue number | 4 |
| State | Published - Nov 2010 |
Keywords
- Acute care
- Patient experience of care
- Patient-provider relationships
- Sickle cell disease
ASJC Scopus subject areas
- Public Health, Environmental and Occupational Health