Policy statement - Using personal health records to improve the quality of health care for children

Joseph H. Schneider, Eugenia Marcus, Mark A. Del Beccaro, Kristin A. Benson, Donna M. D'Alessandro, Willa H. Drummond, Eric G. Handler, George R Kim, Michael G. Leu, Gregg C. Lund, Alan E. Zuckerman, Mark M. Simonian, S. Andrew Spooner, Jennifer Mansour

Research output: Contribution to journalArticle

Abstract

A personal health record (PHR) is a repository of information from multiple contributors (eg, patient, family, guardians, physicians, and other health care professionals) regarding the health of an individual. The development of electronic PHRs presents new opportunities and challenges to the practice of pediatrics. This policy statement provides recommendations for actions that pediatricians can take to support the development and use of PHRs for children. Pediatric health care professionals must become actively involved in developing and adopting PHRs and PHR systems. The American Academy of Pediatrics supports development of: • educational programs for families and clinicians on effective and efficient use of PHRs; • incentives to facilitate PHR use and maintenance; and • child- and adolescent-friendly standards for PHR content, portability, security, and privacy. Properly designed PHR systems for pediatric care can empower patients. PHRs can improve access to health information, improve coordination of preventive health and health maintenance activities, and support emergency and disaster management activities. PHRs provide support for the medical home for all children, including those with special health care needs and those in foster care. PHRs can also provide information to serve as the basis for pediatric quality improvement efforts. For PHRs to be adopted sufficiently to realize these benefits, we must determine how best to support their development and adoption. Privacy and security issues, especially with regard to children and adolescents, must be addressed.

Original languageEnglish (US)
Pages (from-to)403-409
Number of pages7
JournalPediatrics
Volume124
Issue number1
DOIs
StatePublished - Jul 2009
Externally publishedYes

Fingerprint

Personal Health Records
Quality of Health Care
Pediatrics
Privacy
Health
Delivery of Health Care
Patient-Centered Care
Access to Information
Program Development
Family Physicians
Disasters
Quality Improvement
Motivation
Emergencies
Maintenance

Keywords

  • Personal health records

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Schneider, J. H., Marcus, E., Del Beccaro, M. A., Benson, K. A., D'Alessandro, D. M., Drummond, W. H., ... Mansour, J. (2009). Policy statement - Using personal health records to improve the quality of health care for children. Pediatrics, 124(1), 403-409. https://doi.org/10.1542/peds.2009-1005

Policy statement - Using personal health records to improve the quality of health care for children. / Schneider, Joseph H.; Marcus, Eugenia; Del Beccaro, Mark A.; Benson, Kristin A.; D'Alessandro, Donna M.; Drummond, Willa H.; Handler, Eric G.; Kim, George R; Leu, Michael G.; Lund, Gregg C.; Zuckerman, Alan E.; Simonian, Mark M.; Andrew Spooner, S.; Mansour, Jennifer.

In: Pediatrics, Vol. 124, No. 1, 07.2009, p. 403-409.

Research output: Contribution to journalArticle

Schneider, JH, Marcus, E, Del Beccaro, MA, Benson, KA, D'Alessandro, DM, Drummond, WH, Handler, EG, Kim, GR, Leu, MG, Lund, GC, Zuckerman, AE, Simonian, MM, Andrew Spooner, S & Mansour, J 2009, 'Policy statement - Using personal health records to improve the quality of health care for children', Pediatrics, vol. 124, no. 1, pp. 403-409. https://doi.org/10.1542/peds.2009-1005
Schneider JH, Marcus E, Del Beccaro MA, Benson KA, D'Alessandro DM, Drummond WH et al. Policy statement - Using personal health records to improve the quality of health care for children. Pediatrics. 2009 Jul;124(1):403-409. https://doi.org/10.1542/peds.2009-1005
Schneider, Joseph H. ; Marcus, Eugenia ; Del Beccaro, Mark A. ; Benson, Kristin A. ; D'Alessandro, Donna M. ; Drummond, Willa H. ; Handler, Eric G. ; Kim, George R ; Leu, Michael G. ; Lund, Gregg C. ; Zuckerman, Alan E. ; Simonian, Mark M. ; Andrew Spooner, S. ; Mansour, Jennifer. / Policy statement - Using personal health records to improve the quality of health care for children. In: Pediatrics. 2009 ; Vol. 124, No. 1. pp. 403-409.
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