TY - JOUR
T1 - Perceptions of barriers and facilitators
T2 - Self-management decisions by older adolescents and adults with CF
AU - George, Maureen
AU - Rand-Giovannetti, Devin
AU - Eakin, Michelle N.
AU - Borrelli, Belinda
AU - Zettler, Melissa
AU - Riekert, Kristin A.
N1 - Funding Information:
This research was supported by the National Heart Lung Blood Institute grant HL87997 . The study sponsors had no role in the study design, collection, analysis, or interpretation of data, or in the writing of the manuscript or decision to submit for publication.
PY - 2010/12
Y1 - 2010/12
N2 - Background: Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF. Methods: Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes. Results: Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%). Conclusions: Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.
AB - Background: Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF. Methods: Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes. Results: Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%). Conclusions: Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.
KW - Adherence
KW - Feedback
KW - Quality of life
KW - Self-management
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U2 - 10.1016/j.jcf.2010.08.016
DO - 10.1016/j.jcf.2010.08.016
M3 - Article
C2 - 20846910
AN - SCOPUS:78650197368
SN - 1569-1993
VL - 9
SP - 425
EP - 432
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
IS - 6
ER -