Perceptions of barriers and facilitators: Self-management decisions by older adolescents and adults with CF

Maureen George, Devin Rand-Giovannetti, Michelle N. Eakin, Belinda Borrelli, Melissa Zettler, Kristin A. Riekert

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF. Methods: Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes. Results: Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%). Conclusions: Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.

Original languageEnglish (US)
Pages (from-to)425-432
Number of pages8
JournalJournal of Cystic Fibrosis
Volume9
Issue number6
DOIs
StatePublished - Dec 2010

Keywords

  • Adherence
  • Feedback
  • Quality of life
  • Self-management

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Pulmonary and Respiratory Medicine

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