TY - JOUR
T1 - PatientViewpoint
T2 - A website for patient-reported outcomes assessment
AU - Snyder, Claire F.
AU - Jensen, Roxanne
AU - Courtin, S. Orion
AU - Wu, Albert W.
AU - Aaronson, Neil
AU - Brundage, Michael
AU - Gotay, Carolyn
AU - Hodge, James
AU - Hynes, Denise
AU - Jones, J. B.
AU - Snyder, Claire
AU - Wasson, John
AU - Wu, Albert
AU - Yount, Susan
AU - Zebrack, Brad
N1 - Funding Information:
Acknowledgments The authors would like to thank the Website Development Team (Michelle Campbell, Ray Hamann, John Hildebrand, Laxmi Machavarapu) and Bryce Reeve, PhD, our National Cancer Institute project officer. This research was funded by a grant from the National Cancer Institute (R21 CA113223-01, Dr. Albert Wu, PI). Dr. Snyder is supported by a Mentored Research Scholar Grant from the American Cancer Society (MRSG-08-011-01-CPPB).
PY - 2009/9
Y1 - 2009/9
N2 - Purpose: To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR). Methods: A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10). Results: Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientViewpoint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site. Conclusions: Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.
AB - Purpose: To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR). Methods: A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10). Results: Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientViewpoint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site. Conclusions: Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.
KW - Cancer
KW - Health-related quality of life
KW - Internet
KW - Patient-reported outcomes
KW - Website
UR - http://www.scopus.com/inward/record.url?scp=69249229604&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=69249229604&partnerID=8YFLogxK
U2 - 10.1007/s11136-009-9497-8
DO - 10.1007/s11136-009-9497-8
M3 - Article
C2 - 19544089
AN - SCOPUS:69249229604
VL - 18
SP - 793
EP - 800
JO - Quality of Life Research
JF - Quality of Life Research
SN - 0962-9343
IS - 7
ER -