Patients' Perceptions of Trichiasis Surgery

Results from the Partnership for Rapid Elimination of Trachoma (PRET) Surgery Clinical Trial

Kathleen C. Oktavec, Sandra Cassard, Jennifer C. Harding, Majid S. Othman, Shannath L Merbs, Sheila K West, Emily W. Gower

Research output: Contribution to journalArticle

Abstract

Purpose: While quality of life surveys have been conducted in trachomatous trichiasis (TT) surgery populations, little is known about patients' perceptions of the surgical experience and outcomes. Methods: We interviewed a subset of Partnership for the Rapid Elimination of Trachoma (PRET) surgery trial participants 24 months after surgery. Questions focused on current ocular symptoms, perceived daily functioning, physical appearance, and overall perception of surgery. We stratified participants based on surgical outcomes: normal upper eyelid, postoperative TT, or eyelid contour abnormality (ECA) in one or both eyelids. We compared responses between sexes and surgical outcome groups using contingency tables and Fisher's exact tests. Results: A total of 483 individuals participated and 86% were very satisfied with surgery results; 96% reported ocular symptom improvement. Participants with moderate to severe ECA or postoperative TT were more likely to report current ocular problems than those with normal eyelids (46% and 58% vs 34%, respectively; p=0.01 for each comparison). The most common symptom among participants with moderate to severe postoperative TT was feeling lashes touching (blurred vision was the most common among participants with moderate to severe ECA). Overall, 83% stated surgery improved daily life; participants with ECA were less likely to report improvement than others (p=0.002). Participants who had moderate or severe postoperative TT were least likely to state that they would undergo repeat surgery (80%), followed by participants with ECA (86%). Conclusions: Postoperative TT and ECA both reduced satisfaction with surgery, but appeared to influence different aspects of life. Improving surgical outcomes both by reducing recurrence rates and limiting ECAs are essential.

Original languageEnglish (US)
Pages (from-to)153-161
Number of pages9
JournalOphthalmic Epidemiology
Volume22
Issue number3
DOIs
StatePublished - Jun 1 2015

Fingerprint

Trichiasis
Trachoma
Eyelids
Clinical Trials
Reoperation
Emotions
Quality of Life

Keywords

  • Eyelid contour abnormality
  • Patient satisfaction
  • Surgery
  • Trachoma
  • Trichiasis

ASJC Scopus subject areas

  • Ophthalmology
  • Epidemiology

Cite this

Patients' Perceptions of Trichiasis Surgery : Results from the Partnership for Rapid Elimination of Trachoma (PRET) Surgery Clinical Trial. / Oktavec, Kathleen C.; Cassard, Sandra; Harding, Jennifer C.; Othman, Majid S.; Merbs, Shannath L; West, Sheila K; Gower, Emily W.

In: Ophthalmic Epidemiology, Vol. 22, No. 3, 01.06.2015, p. 153-161.

Research output: Contribution to journalArticle

@article{a94899a02d5b4253b6633cd1b9797c31,
title = "Patients' Perceptions of Trichiasis Surgery: Results from the Partnership for Rapid Elimination of Trachoma (PRET) Surgery Clinical Trial",
abstract = "Purpose: While quality of life surveys have been conducted in trachomatous trichiasis (TT) surgery populations, little is known about patients' perceptions of the surgical experience and outcomes. Methods: We interviewed a subset of Partnership for the Rapid Elimination of Trachoma (PRET) surgery trial participants 24 months after surgery. Questions focused on current ocular symptoms, perceived daily functioning, physical appearance, and overall perception of surgery. We stratified participants based on surgical outcomes: normal upper eyelid, postoperative TT, or eyelid contour abnormality (ECA) in one or both eyelids. We compared responses between sexes and surgical outcome groups using contingency tables and Fisher's exact tests. Results: A total of 483 individuals participated and 86{\%} were very satisfied with surgery results; 96{\%} reported ocular symptom improvement. Participants with moderate to severe ECA or postoperative TT were more likely to report current ocular problems than those with normal eyelids (46{\%} and 58{\%} vs 34{\%}, respectively; p=0.01 for each comparison). The most common symptom among participants with moderate to severe postoperative TT was feeling lashes touching (blurred vision was the most common among participants with moderate to severe ECA). Overall, 83{\%} stated surgery improved daily life; participants with ECA were less likely to report improvement than others (p=0.002). Participants who had moderate or severe postoperative TT were least likely to state that they would undergo repeat surgery (80{\%}), followed by participants with ECA (86{\%}). Conclusions: Postoperative TT and ECA both reduced satisfaction with surgery, but appeared to influence different aspects of life. Improving surgical outcomes both by reducing recurrence rates and limiting ECAs are essential.",
keywords = "Eyelid contour abnormality, Patient satisfaction, Surgery, Trachoma, Trichiasis",
author = "Oktavec, {Kathleen C.} and Sandra Cassard and Harding, {Jennifer C.} and Othman, {Majid S.} and Merbs, {Shannath L} and West, {Sheila K} and Gower, {Emily W.}",
year = "2015",
month = "6",
day = "1",
doi = "10.3109/09286586.2014.988873",
language = "English (US)",
volume = "22",
pages = "153--161",
journal = "Ophthalmic Epidemiology",
issn = "0928-6586",
publisher = "Informa Healthcare",
number = "3",

}

TY - JOUR

T1 - Patients' Perceptions of Trichiasis Surgery

T2 - Results from the Partnership for Rapid Elimination of Trachoma (PRET) Surgery Clinical Trial

AU - Oktavec, Kathleen C.

AU - Cassard, Sandra

AU - Harding, Jennifer C.

AU - Othman, Majid S.

AU - Merbs, Shannath L

AU - West, Sheila K

AU - Gower, Emily W.

PY - 2015/6/1

Y1 - 2015/6/1

N2 - Purpose: While quality of life surveys have been conducted in trachomatous trichiasis (TT) surgery populations, little is known about patients' perceptions of the surgical experience and outcomes. Methods: We interviewed a subset of Partnership for the Rapid Elimination of Trachoma (PRET) surgery trial participants 24 months after surgery. Questions focused on current ocular symptoms, perceived daily functioning, physical appearance, and overall perception of surgery. We stratified participants based on surgical outcomes: normal upper eyelid, postoperative TT, or eyelid contour abnormality (ECA) in one or both eyelids. We compared responses between sexes and surgical outcome groups using contingency tables and Fisher's exact tests. Results: A total of 483 individuals participated and 86% were very satisfied with surgery results; 96% reported ocular symptom improvement. Participants with moderate to severe ECA or postoperative TT were more likely to report current ocular problems than those with normal eyelids (46% and 58% vs 34%, respectively; p=0.01 for each comparison). The most common symptom among participants with moderate to severe postoperative TT was feeling lashes touching (blurred vision was the most common among participants with moderate to severe ECA). Overall, 83% stated surgery improved daily life; participants with ECA were less likely to report improvement than others (p=0.002). Participants who had moderate or severe postoperative TT were least likely to state that they would undergo repeat surgery (80%), followed by participants with ECA (86%). Conclusions: Postoperative TT and ECA both reduced satisfaction with surgery, but appeared to influence different aspects of life. Improving surgical outcomes both by reducing recurrence rates and limiting ECAs are essential.

AB - Purpose: While quality of life surveys have been conducted in trachomatous trichiasis (TT) surgery populations, little is known about patients' perceptions of the surgical experience and outcomes. Methods: We interviewed a subset of Partnership for the Rapid Elimination of Trachoma (PRET) surgery trial participants 24 months after surgery. Questions focused on current ocular symptoms, perceived daily functioning, physical appearance, and overall perception of surgery. We stratified participants based on surgical outcomes: normal upper eyelid, postoperative TT, or eyelid contour abnormality (ECA) in one or both eyelids. We compared responses between sexes and surgical outcome groups using contingency tables and Fisher's exact tests. Results: A total of 483 individuals participated and 86% were very satisfied with surgery results; 96% reported ocular symptom improvement. Participants with moderate to severe ECA or postoperative TT were more likely to report current ocular problems than those with normal eyelids (46% and 58% vs 34%, respectively; p=0.01 for each comparison). The most common symptom among participants with moderate to severe postoperative TT was feeling lashes touching (blurred vision was the most common among participants with moderate to severe ECA). Overall, 83% stated surgery improved daily life; participants with ECA were less likely to report improvement than others (p=0.002). Participants who had moderate or severe postoperative TT were least likely to state that they would undergo repeat surgery (80%), followed by participants with ECA (86%). Conclusions: Postoperative TT and ECA both reduced satisfaction with surgery, but appeared to influence different aspects of life. Improving surgical outcomes both by reducing recurrence rates and limiting ECAs are essential.

KW - Eyelid contour abnormality

KW - Patient satisfaction

KW - Surgery

KW - Trachoma

KW - Trichiasis

UR - http://www.scopus.com/inward/record.url?scp=84936943563&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84936943563&partnerID=8YFLogxK

U2 - 10.3109/09286586.2014.988873

DO - 10.3109/09286586.2014.988873

M3 - Article

VL - 22

SP - 153

EP - 161

JO - Ophthalmic Epidemiology

JF - Ophthalmic Epidemiology

SN - 0928-6586

IS - 3

ER -