Patient–Family Agenda Setting for Primary Care Patients with Cognitive Impairment: the SAME Page Trial

Jennifer Wolff, Debra Roter, Cynthia Boyd, David L Roth, Diane M. Echavarria, Jennifer Aufill, Judith B. Vick, Laura N Gitlin

Research output: Contribution to journalArticle

Abstract

Background: Establishing priorities for discussion during time-limited primary care visits is challenging in the care of patients with cognitive impairment. These patients commonly attend primary care visits with a family companion. Objective: To examine whether a patient–family agenda setting intervention improves primary care visit communication for patients with cognitive impairment Design: Two-group pilot randomized controlled study Participants: Patients aged 65 + with cognitive impairment and family companions (n = 93 dyads) and clinicians (n = 14) from two general and one geriatrics primary care clinic Intervention: A self-administered paper-pencil checklist to clarify the role of the companion and establish a shared visit agenda Measurements: Patient-centered communication (primary); verbal activity, information disclosure including discussion of memory, and visit duration (secondary), from audio recordings of visit discussion Results: Dyads were randomized to usual care (n = 44) or intervention (n = 49). Intervention participants endorsed an active communication role for companions to help patients understand what the clinician says or means (90% of dyads), remind patients to ask questions or ask clinicians questions directly (84% of dyads), or listen and take notes (82% of dyads). Intervention dyads identified 4.4 health issues for the agenda on average: patients more often identified memory (59.2 versus 38.8%; p = 0.012) and mood (42.9 versus 24.5%; p = 0.013) whereas companions more often identified safety (36.7 versus 18.4%; p = 0.039) and personality/behavior change (32.7 versus 16.3%; p = 0.011). Communication was significantly more patient-centered in intervention than in control visits at general clinics (p < 0.001) and in pooled analyses (ratio of 0.86 versus 0.68; p = 0.046). At general clinics, intervention (versus control) dyads contributed more lifestyle and psychosocial talk (p < 0.001) and less biomedical talk (p < 0.001) and companions were more verbally active (p < 0.005). No intervention effects were found at the geriatrics clinic. No effect on memory discussions or visit duration was observed. Conclusion: Patient–family agenda setting may improve primary care visit communication for patients with cognitive impairment. Trial Registration: ClinicalTrials.gov: NCT02986958.

Original languageEnglish (US)
JournalJournal of General Internal Medicine
DOIs
StateAccepted/In press - Jan 1 2018

Keywords

  • cognitive impairment
  • dementia
  • family caregiving
  • health communication
  • primary care

ASJC Scopus subject areas

  • Internal Medicine

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