Patient-reported outcomes: pathways to better health, better services, and better societies

N. Black, L. Burke, C. B. Forrest, U. H. Ravens Sieberer, S. Ahmed, J. M. Valderas, S. J. Bartlett, J. Alonso

Research output: Contribution to journalArticle

Abstract

While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.

Original languageEnglish (US)
JournalQuality of Life Research
DOIs
StateAccepted/In press - Nov 13 2015
Externally publishedYes

Fingerprint

Health Services
Delivery of Health Care
Drug Labeling
Population Surveillance
Drug Approval
Quality of Health Care
Health
Program Evaluation
Health Expenditures
Population
Patient Care
Organizations
Blood Pressure
Patient Reported Outcome Measures
Research
Therapeutics

Keywords

  • Health evaluations
  • Health services
  • Patient-reported outcomes
  • Population monitoring

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Black, N., Burke, L., Forrest, C. B., Ravens Sieberer, U. H., Ahmed, S., Valderas, J. M., ... Alonso, J. (Accepted/In press). Patient-reported outcomes: pathways to better health, better services, and better societies. Quality of Life Research. https://doi.org/10.1007/s11136-015-1168-3

Patient-reported outcomes : pathways to better health, better services, and better societies. / Black, N.; Burke, L.; Forrest, C. B.; Ravens Sieberer, U. H.; Ahmed, S.; Valderas, J. M.; Bartlett, S. J.; Alonso, J.

In: Quality of Life Research, 13.11.2015.

Research output: Contribution to journalArticle

Black, N, Burke, L, Forrest, CB, Ravens Sieberer, UH, Ahmed, S, Valderas, JM, Bartlett, SJ & Alonso, J 2015, 'Patient-reported outcomes: pathways to better health, better services, and better societies', Quality of Life Research. https://doi.org/10.1007/s11136-015-1168-3
Black, N. ; Burke, L. ; Forrest, C. B. ; Ravens Sieberer, U. H. ; Ahmed, S. ; Valderas, J. M. ; Bartlett, S. J. ; Alonso, J. / Patient-reported outcomes : pathways to better health, better services, and better societies. In: Quality of Life Research. 2015.
@article{ac92f3bd79ff44888be4f0e813533c5b,
title = "Patient-reported outcomes: pathways to better health, better services, and better societies",
abstract = "While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.",
keywords = "Health evaluations, Health services, Patient-reported outcomes, Population monitoring",
author = "N. Black and L. Burke and Forrest, {C. B.} and {Ravens Sieberer}, {U. H.} and S. Ahmed and Valderas, {J. M.} and Bartlett, {S. J.} and J. Alonso",
year = "2015",
month = "11",
day = "13",
doi = "10.1007/s11136-015-1168-3",
language = "English (US)",
journal = "Quality of Life Research",
issn = "0962-9343",
publisher = "Springer Netherlands",

}

TY - JOUR

T1 - Patient-reported outcomes

T2 - pathways to better health, better services, and better societies

AU - Black, N.

AU - Burke, L.

AU - Forrest, C. B.

AU - Ravens Sieberer, U. H.

AU - Ahmed, S.

AU - Valderas, J. M.

AU - Bartlett, S. J.

AU - Alonso, J.

PY - 2015/11/13

Y1 - 2015/11/13

N2 - While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.

AB - While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.

KW - Health evaluations

KW - Health services

KW - Patient-reported outcomes

KW - Population monitoring

UR - http://www.scopus.com/inward/record.url?scp=84946944291&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84946944291&partnerID=8YFLogxK

U2 - 10.1007/s11136-015-1168-3

DO - 10.1007/s11136-015-1168-3

M3 - Article

C2 - 26563251

AN - SCOPUS:84946944291

JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

ER -