TY - JOUR
T1 - Patient-level barriers and facilitators to completion of patient-reported outcomes measures
AU - Long, Chao
AU - Beres, Laura K.
AU - Wu, Albert W.
AU - Giladi, Aviram M.
N1 - Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer Nature Switzerland AG.
PY - 2022/6
Y1 - 2022/6
N2 - Purpose: To identify patient-level barriers and facilitators to completion of patient-reported outcomes measures (PROMs) in a hand and upper extremity clinic in Baltimore, Maryland. Methods: We conducted 12 h of direct observation of PROM completion (October–November, 2020). Ethnographic observation memos were qualitatively analyzed for barriers and facilitators using rapid thematic analysis. Informed by observation findings, we conducted 17 semi-structured interviews with mixed-literacy patients, caregivers, and clinic staff to understand the patient experience when completing PROMs (November 2020–March 2021). We identified initial themes through inductive and deductive framework analysis and validated findings through subsequent interviews with member-checking. Results: We identified nine patient-level factors that influence PROM completion: platform design, print literacy, health literacy, technology literacy, language proficiency, physical functioning, vision, cognitive functioning, and time. Conclusions: There are multiple distinct patient-level factors that affect PROM completion. Failure to consider these factors in PROM design and implementation may lower completion rates or prevent accurate completion, undermining PROM validity. Because certain factors affect minority populations at disproportionate rates, this may also contribute to existing health disparities.
AB - Purpose: To identify patient-level barriers and facilitators to completion of patient-reported outcomes measures (PROMs) in a hand and upper extremity clinic in Baltimore, Maryland. Methods: We conducted 12 h of direct observation of PROM completion (October–November, 2020). Ethnographic observation memos were qualitatively analyzed for barriers and facilitators using rapid thematic analysis. Informed by observation findings, we conducted 17 semi-structured interviews with mixed-literacy patients, caregivers, and clinic staff to understand the patient experience when completing PROMs (November 2020–March 2021). We identified initial themes through inductive and deductive framework analysis and validated findings through subsequent interviews with member-checking. Results: We identified nine patient-level factors that influence PROM completion: platform design, print literacy, health literacy, technology literacy, language proficiency, physical functioning, vision, cognitive functioning, and time. Conclusions: There are multiple distinct patient-level factors that affect PROM completion. Failure to consider these factors in PROM design and implementation may lower completion rates or prevent accurate completion, undermining PROM validity. Because certain factors affect minority populations at disproportionate rates, this may also contribute to existing health disparities.
KW - Health care quality, access, and evaluation
KW - Health care surveys
KW - Health services research
KW - Patient outcome assessment
KW - Patient reported outcomes measures
KW - Quality of health care
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U2 - 10.1007/s11136-021-02999-8
DO - 10.1007/s11136-021-02999-8
M3 - Article
C2 - 34533759
AN - SCOPUS:85115022696
SN - 0962-9343
VL - 31
SP - 1711
EP - 1718
JO - Quality of Life Research
JF - Quality of Life Research
IS - 6
ER -