TY - JOUR
T1 - Patient and family engagement strategies for children and adolescents with chronic diseases
T2 - A review of systematic reviews
AU - Smith, Brandon M.
AU - Sharma, Ritu
AU - Das, Asar
AU - Aboumatar, Hanan
AU - Pitts, Samantha I.
AU - Day, Jeff
AU - Holzhauer, Katherine
AU - Bass, Eric
AU - Bennett, Wendy L.
N1 - Funding Information:
This project was funded under Contract No. HHSA290-2015-00006-I, Task Order 75Q80119F32015, from the Agency for Healthcare Research and Quality (AHRQ) of the US Department of Health and Human Services (HHS). The findings and conclusions in this document are those of the author(s), who are responsible for its content, and do not necessarily represent the views of AHRQ. No statement in this report should be construed as an official position of AHRQ or of the U.S. Department of Health and Human Services.
Publisher Copyright:
© 2021 Elsevier B.V.
PY - 2021/9
Y1 - 2021/9
N2 - Objective: Patient and family engagement is important for family-centered care, particularly for children and adolescents with chronic disease. We aimed to 1) identify available evidence from systematic reviews on engagement strategies used to help children, adolescents, and their caregivers manage chronic conditions, and 2) identify gaps in the literature. Methods: We searched PubMed and CINAHL from January 2015 to January 2020 for systematic reviews on patient and family engagement strategies in the pediatrics population (<18 years). Strategies were categorized by direct patient care, health system, and community policy levels. We excluded reviews if interventions were unidirectional or without comparison. Results: We identified 25 systematic reviews. Twenty-two evaluated direct patient care, with 14 (279 unique studies) exclusively in pediatrics and 8 (24 unique studies) that included pediatric results with adults. Three reviews (9 unique studies) evaluated health system strategies. Direct patient care reviews focused on self-management support (n = 16) and shared decisionmaking (n = 6). Asthma was the most frequently evaluated condition (n = 14). Conclusions and practice implications: Engagement strategies for children and adolescents with chronic disease are focused on direct patient care, particularly for asthma. More research is needed to address engagement for broader populations, expanded outcomes, and at health system and community levels.
AB - Objective: Patient and family engagement is important for family-centered care, particularly for children and adolescents with chronic disease. We aimed to 1) identify available evidence from systematic reviews on engagement strategies used to help children, adolescents, and their caregivers manage chronic conditions, and 2) identify gaps in the literature. Methods: We searched PubMed and CINAHL from January 2015 to January 2020 for systematic reviews on patient and family engagement strategies in the pediatrics population (<18 years). Strategies were categorized by direct patient care, health system, and community policy levels. We excluded reviews if interventions were unidirectional or without comparison. Results: We identified 25 systematic reviews. Twenty-two evaluated direct patient care, with 14 (279 unique studies) exclusively in pediatrics and 8 (24 unique studies) that included pediatric results with adults. Three reviews (9 unique studies) evaluated health system strategies. Direct patient care reviews focused on self-management support (n = 16) and shared decisionmaking (n = 6). Asthma was the most frequently evaluated condition (n = 14). Conclusions and practice implications: Engagement strategies for children and adolescents with chronic disease are focused on direct patient care, particularly for asthma. More research is needed to address engagement for broader populations, expanded outcomes, and at health system and community levels.
KW - Patient centered care
KW - Patient engagement
KW - Pediatric chronic disease
KW - Self-management
KW - Shared decision making
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U2 - 10.1016/j.pec.2021.02.026
DO - 10.1016/j.pec.2021.02.026
M3 - Review article
C2 - 33678498
AN - SCOPUS:85102042194
SN - 0738-3991
VL - 104
SP - 2213
EP - 2223
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 9
ER -