Palliative care needs in patients hospitalized with heart failure (PCHF) study

rationale and design

Ross T. Campbell, Colette E. Jackson, Ann Wright, Roy S. Gardner, Ian Ford, Patricia M Davidson, Martin A. Denvir, Karen J. Hogg, Miriam J. Johnson, Mark C. Petrie, John J.V. McMurray

Research output: Contribution to journalArticle

Abstract

Aims: The primary aim of this study is to provide data to inform the design of a randomized controlled clinical trial (RCT) of a palliative care (PC) intervention in heart failure (HF). We will identify an appropriate study population with a high prevalence of PC needs defined using quantifiable measures. We will also identify which components a specific and targeted PC intervention in HF should include and attempt to define the most relevant trial outcomes. Methods: An unselected, prospective, near-consecutive, cohort of patients admitted to hospital with acute decompensated HF will be enrolled over a 2-year period. All potential participants will be screened using B-type natriuretic peptide and echocardiography, and all those enrolled will be extensively characterized in terms of their HF status, comorbidity, and PC needs. Quantitative assessment of PC needs will include evaluation of general and disease-specific quality of life, mood, symptom burden, caregiver burden, and end of life care. Inpatient assessments will be performed and after discharge outpatient assessments will be carried out every 4 months for up to 2.5 years. Participants will be followed up for a minimum of 1 year for hospital admissions, and place and cause of death. Methods for identifying patients with HF with PC needs will be evaluated, and estimates of healthcare utilisation performed. Conclusion: By assessing the prevalence of these needs, describing how these needs change over time, and evaluating how best PC needs can be identified, we will provide the foundation for designing an RCT of a PC intervention in HF.

Original languageEnglish (US)
Pages (from-to)25-36
Number of pages12
JournalESC heart failure
Volume2
Issue number1
DOIs
StatePublished - Jan 1 2015

Fingerprint

Palliative Care
Heart Failure
Randomized Controlled Trials
Terminal Care
Brain Natriuretic Peptide
Caregivers
Echocardiography
Comorbidity
Inpatients
Cause of Death
Outpatients
Quality of Life
Delivery of Health Care
Population

Keywords

  • Heart failure
  • Palliative care

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

Cite this

Campbell, R. T., Jackson, C. E., Wright, A., Gardner, R. S., Ford, I., Davidson, P. M., ... McMurray, J. J. V. (2015). Palliative care needs in patients hospitalized with heart failure (PCHF) study: rationale and design. ESC heart failure, 2(1), 25-36. https://doi.org/10.1002/ehf2.12027

Palliative care needs in patients hospitalized with heart failure (PCHF) study : rationale and design. / Campbell, Ross T.; Jackson, Colette E.; Wright, Ann; Gardner, Roy S.; Ford, Ian; Davidson, Patricia M; Denvir, Martin A.; Hogg, Karen J.; Johnson, Miriam J.; Petrie, Mark C.; McMurray, John J.V.

In: ESC heart failure, Vol. 2, No. 1, 01.01.2015, p. 25-36.

Research output: Contribution to journalArticle

Campbell, RT, Jackson, CE, Wright, A, Gardner, RS, Ford, I, Davidson, PM, Denvir, MA, Hogg, KJ, Johnson, MJ, Petrie, MC & McMurray, JJV 2015, 'Palliative care needs in patients hospitalized with heart failure (PCHF) study: rationale and design', ESC heart failure, vol. 2, no. 1, pp. 25-36. https://doi.org/10.1002/ehf2.12027
Campbell, Ross T. ; Jackson, Colette E. ; Wright, Ann ; Gardner, Roy S. ; Ford, Ian ; Davidson, Patricia M ; Denvir, Martin A. ; Hogg, Karen J. ; Johnson, Miriam J. ; Petrie, Mark C. ; McMurray, John J.V. / Palliative care needs in patients hospitalized with heart failure (PCHF) study : rationale and design. In: ESC heart failure. 2015 ; Vol. 2, No. 1. pp. 25-36.
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