Osteogenesis imperfecta: Effecting the transition from adolescent to adult medical care

Jay Shapiro, E. L. Germain-Lee

Research output: Contribution to journalArticle

Abstract

The objective of this paper is to provide guidelines for pediatricians, adult physicians in different medical disciplines and patients' families who are planning the transition to adult care for the adolescent with osteogenesis imperfecta (OI). This observational report reflects concerns expressed by patients, their families, and involved physicians regarding the problems encountered with the transition of care. Methods for dealing with transitional issues are presented. OI is a heritable disorder of connective tissue in which fractures are the dominant clinical feature. However, OI is a systemic disorder with broad clinical variability in which there are unpredictable episodes of trauma. Coordinated team support provides the best level of care for the child with OI. This paper discusses 4 key topics related to effecting the transition from pediatric to adult care: 1) Transitioning and maintaining health, 2) Preserving or improving the level of function, 3) Assuring continuity of medical/surgical care, and 4) Re-structuring psychosocial and work-related systems. The process of transition requires active communication between the pediatric and adult team members along with a proactive approach by the patient and family. In addition, as the transition is established, the patient with OI should be encouraged to be his/her own advocate and care coordinator.

Original languageEnglish (US)
Pages (from-to)24-27
Number of pages4
JournalJournal of Musculoskeletal Neuronal Interactions
Volume12
Issue number1
StatePublished - Mar 2012

Fingerprint

Osteogenesis Imperfecta
Transition to Adult Care
Patient Transfer
Family Physicians
Family Planning Services
Child Care
Connective Tissue
Communication
Guidelines
Pediatrics
Physicians
Health
Wounds and Injuries

Keywords

  • OI adult
  • OI child
  • Osteogenesis imperfecta
  • Transiting care

ASJC Scopus subject areas

  • Endocrinology, Diabetes and Metabolism
  • Orthopedics and Sports Medicine
  • Physiology

Cite this

Osteogenesis imperfecta : Effecting the transition from adolescent to adult medical care. / Shapiro, Jay; Germain-Lee, E. L.

In: Journal of Musculoskeletal Neuronal Interactions, Vol. 12, No. 1, 03.2012, p. 24-27.

Research output: Contribution to journalArticle

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