TY - JOUR
T1 - Opinions about new reproductive genetic technologies
T2 - Hopes and fears for our genetic future
AU - Kalfoglou, Andrea L.
AU - Doksum, Teresa
AU - Bernhardt, Barbara
AU - Geller, Gail
AU - LeRoy, Lisa
AU - Mathews, Debra J.H.
AU - Evans, John H.
AU - Doukas, David J.
AU - Reame, Nancy
AU - Scott, Joan
AU - Hudson, Kathy
N1 - Funding Information:
The authors thank the Pew Charitable Trusts for financial support, and all the focus group participants. The authors also thank Gabriela Garcia, Peter Chapman, Lorraine Bell, Dana Benet, Christine Landino, Tandiwe Njobe, Melissa Rennison and Todd Robbins from Abt Associates, Inc. who moderated focus groups, assisted with the data analysis process, and coded the data.
PY - 2005/6
Y1 - 2005/6
N2 - Objective: To identify underlying beliefs and values shaping Americans' opinions about the appropriate use of new reproductive genetic technologies (RGTs), including preimplantation genetic diagnosis, hypothetical genetic modification, and sperm sorting for sex selection. Design: Scenarios with ethical dilemmas presented to 21 focus groups organized by sex, race/ethnicity, religion, age, education, and parental status. Setting: A city in each state: California, Colorado, Massachusetts, Michigan, and Tennessee. Participant(s): One hundred and eighty-one paid volunteers, ages 18 to 68. Intervention(s): None. Main Outcome Measure(s): Beliefs and values that shape participants' opinions about the appropriate use of new RGTs. Result(s): Regardless of demographic characteristics, focus group participants considered six key factors when determining the appropriateness of using RGTs: [1] whether embryos would be destroyed; [2] the nature of the disease or trait being avoided or sought; [3] technological control over "natural" reproduction; [4] the value of suffering, disability, and difference; [5] the importance of having genetically related children; and [6] the kind of future people desire or fear. Conclusion(s): Public opinions about the appropriate use of RGTs are shaped by numerous complementary and conflicting values beyond classic abortion arguments. Clinicians and policy-makers have the opportunity to consider these opinions when creating messages and crafting policy.
AB - Objective: To identify underlying beliefs and values shaping Americans' opinions about the appropriate use of new reproductive genetic technologies (RGTs), including preimplantation genetic diagnosis, hypothetical genetic modification, and sperm sorting for sex selection. Design: Scenarios with ethical dilemmas presented to 21 focus groups organized by sex, race/ethnicity, religion, age, education, and parental status. Setting: A city in each state: California, Colorado, Massachusetts, Michigan, and Tennessee. Participant(s): One hundred and eighty-one paid volunteers, ages 18 to 68. Intervention(s): None. Main Outcome Measure(s): Beliefs and values that shape participants' opinions about the appropriate use of new RGTs. Result(s): Regardless of demographic characteristics, focus group participants considered six key factors when determining the appropriateness of using RGTs: [1] whether embryos would be destroyed; [2] the nature of the disease or trait being avoided or sought; [3] technological control over "natural" reproduction; [4] the value of suffering, disability, and difference; [5] the importance of having genetically related children; and [6] the kind of future people desire or fear. Conclusion(s): Public opinions about the appropriate use of RGTs are shaped by numerous complementary and conflicting values beyond classic abortion arguments. Clinicians and policy-makers have the opportunity to consider these opinions when creating messages and crafting policy.
KW - Focus groups
KW - Genetic modification
KW - In vitro fertilization
KW - Preimplantation genetic diagnosis
KW - Public opinion
KW - Qualitative research
KW - Reproductive genetics
KW - Sex selection
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U2 - 10.1016/j.fertnstert.2005.01.090
DO - 10.1016/j.fertnstert.2005.01.090
M3 - Article
C2 - 15950627
AN - SCOPUS:20444482493
SN - 0015-0282
VL - 83
SP - 1612
EP - 1621
JO - Fertility and sterility
JF - Fertility and sterility
IS - 6
ER -