Open Hearts: Sharing Data to Improve Outcomes in Congenital Heart Disease

J. Wesley Diddle, Christine M. Riley, Lisa A. Hom, Darren Klugman

Research output: Contribution to journalReview articlepeer-review

Abstract

Purpose of Review: The aim of this manuscript is to review quality improvements and safety initiatives to improve care of patients with congenital and acquired heart disease. Recent Findings: There has been growth of both center-level and multi-center quality improvement endeavors in recent years which has grown in parallel with the expansion of data registries and quality improvement initiatives aimed at improving patient outcomes. Summary: Rapid growth of quality improvement initiatives and registries has lead to improved outcomes as well as a need to improve data management and data capture from the electronic health record. The next phase of quality improvement in the care of patients with congenital and acquired heart disease must focus on data usability, management, and improved collaboration with electronic health vendors and industry experts in data extraction, analysis, and management.

Original languageEnglish (US)
Pages (from-to)263-273
Number of pages11
JournalCurrent Treatment Options in Pediatrics
Volume6
Issue number4
DOIs
StatePublished - Dec 2020

Keywords

  • Congenital heart disease
  • Databases
  • Quality improvement
  • Registries

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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