Open Hearts: Sharing Data to Improve Outcomes in Congenital Heart Disease

J. Wesley Diddle; Christine M. Riley; Lisa A. Hom; Darren Klugman

doi:10.1007/s40746-020-00211-6

Open Hearts: Sharing Data to Improve Outcomes in Congenital Heart Disease

J. Wesley Diddle, Christine M. Riley, Lisa A. Hom, Darren Klugman

School of Medicine

Research output: Contribution to journal › Review article › peer-review

Abstract

Purpose of Review: The aim of this manuscript is to review quality improvements and safety initiatives to improve care of patients with congenital and acquired heart disease. Recent Findings: There has been growth of both center-level and multi-center quality improvement endeavors in recent years which has grown in parallel with the expansion of data registries and quality improvement initiatives aimed at improving patient outcomes. Summary: Rapid growth of quality improvement initiatives and registries has lead to improved outcomes as well as a need to improve data management and data capture from the electronic health record. The next phase of quality improvement in the care of patients with congenital and acquired heart disease must focus on data usability, management, and improved collaboration with electronic health vendors and industry experts in data extraction, analysis, and management.

Original language	English (US)
Pages (from-to)	263-273
Number of pages	11
Journal	Current Treatment Options in Pediatrics
Volume	6
Issue number	4
DOIs	https://doi.org/10.1007/s40746-020-00211-6
State	Published - Dec 2020

Keywords

Congenital heart disease
Databases
Quality improvement
Registries

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1007/s40746-020-00211-6

Cite this

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title = "Open Hearts: Sharing Data to Improve Outcomes in Congenital Heart Disease",

abstract = "Purpose of Review: The aim of this manuscript is to review quality improvements and safety initiatives to improve care of patients with congenital and acquired heart disease. Recent Findings: There has been growth of both center-level and multi-center quality improvement endeavors in recent years which has grown in parallel with the expansion of data registries and quality improvement initiatives aimed at improving patient outcomes. Summary: Rapid growth of quality improvement initiatives and registries has lead to improved outcomes as well as a need to improve data management and data capture from the electronic health record. The next phase of quality improvement in the care of patients with congenital and acquired heart disease must focus on data usability, management, and improved collaboration with electronic health vendors and industry experts in data extraction, analysis, and management.",

keywords = "Congenital heart disease, Databases, Quality improvement, Registries",

author = "Diddle, {J. Wesley} and Riley, {Christine M.} and Hom, {Lisa A.} and Darren Klugman",

note = "Publisher Copyright: {\textcopyright} 2020, Springer Nature Switzerland AG.",

year = "2020",

month = dec,

doi = "10.1007/s40746-020-00211-6",

language = "English (US)",

volume = "6",

pages = "263--273",

journal = "Current Treatment Options in Pediatrics",

issn = "2198-6088",

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T1 - Open Hearts

T2 - Sharing Data to Improve Outcomes in Congenital Heart Disease

AU - Diddle, J. Wesley

AU - Riley, Christine M.

AU - Hom, Lisa A.

AU - Klugman, Darren

PY - 2020/12

Y1 - 2020/12

N2 - Purpose of Review: The aim of this manuscript is to review quality improvements and safety initiatives to improve care of patients with congenital and acquired heart disease. Recent Findings: There has been growth of both center-level and multi-center quality improvement endeavors in recent years which has grown in parallel with the expansion of data registries and quality improvement initiatives aimed at improving patient outcomes. Summary: Rapid growth of quality improvement initiatives and registries has lead to improved outcomes as well as a need to improve data management and data capture from the electronic health record. The next phase of quality improvement in the care of patients with congenital and acquired heart disease must focus on data usability, management, and improved collaboration with electronic health vendors and industry experts in data extraction, analysis, and management.

AB - Purpose of Review: The aim of this manuscript is to review quality improvements and safety initiatives to improve care of patients with congenital and acquired heart disease. Recent Findings: There has been growth of both center-level and multi-center quality improvement endeavors in recent years which has grown in parallel with the expansion of data registries and quality improvement initiatives aimed at improving patient outcomes. Summary: Rapid growth of quality improvement initiatives and registries has lead to improved outcomes as well as a need to improve data management and data capture from the electronic health record. The next phase of quality improvement in the care of patients with congenital and acquired heart disease must focus on data usability, management, and improved collaboration with electronic health vendors and industry experts in data extraction, analysis, and management.

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KW - Databases

KW - Quality improvement

KW - Registries

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Open Hearts: Sharing Data to Improve Outcomes in Congenital Heart Disease

Abstract

Keywords

ASJC Scopus subject areas

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