OMERACT 2018 modified patient-reported outcome domain core set in the life impact area for adult idiopathic inflammatory myopathies

Malin Regardt, Christopher A. Mecoli, Jin Kyun Park, Ingrid de Groot, Catherine Sarver, Merrilee Needham, Marianne de Visser, Beverly Shea, Clifton O. Bingham, Ingrid E. Lundberg, Yeong W. Song, Lisa Christopher-Stine, Helene Alexanderson

Research output: Contribution to journalArticlepeer-review

9 Scopus citations

Abstract

Objective. To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018. Methods. Based on results from international focus groups and Delphi surveys, a draft core set was developed. Results. Domains muscle symptoms, fatigue, level of physical activity, and pain reached ≥ 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018. Conclusion. We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.

Original languageEnglish (US)
Pages (from-to)1351-1354
Number of pages4
JournalJournal of Rheumatology
Volume46
Issue number10
DOIs
StatePublished - 2019

Keywords

  • Delphi
  • Myositis
  • Omeract
  • Outcome assessment
  • Patient-reported outcomes

ASJC Scopus subject areas

  • Rheumatology
  • Immunology and Allergy
  • Immunology

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