Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants

Monica E. Lemmon, Hanna E. Huffstetler, Pamela Donohue, Madelaine Katz, Mary C. Barks, Emma Schindler, Debra Brandon, Renee D. Boss, Peter A. Ubel

Research output: Contribution to journalArticlepeer-review

Abstract

Parents of infants at risk of neurodevelopmental impairment require clear and individualized information about what to expect for their child, yet data suggest they have difficulty knowing how to ask for this information. Here, we pilot a Question Prompt List (QPL) with parents of infants at risk of neurodevelopmental impairment. To assess real-time use of the QPL, we recorded family meetings and collected data from parents and clinicians about the QPL experience. Qualitative data were analyzed using directed content analysis. Ten parents were enrolled. In family meetings, clinicians universally acknowledged the QPL and most used the QPL to guide meeting content. All parents who used the QPL found it useful and would recommend the tool to others. In interviews, parents described that the QPL offered novel questions and facilitated more prepared answers from the team. Future studies should test the impact of this QPL on parent understanding and communication quality.

Original languageEnglish (US)
Pages (from-to)653-659
Number of pages7
JournalJournal of child neurology
Volume34
Issue number11
DOIs
StatePublished - Oct 1 2019

Keywords

  • communication
  • neonate
  • neurology
  • question prompt list

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Clinical Neurology

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