Needs assessment for those donating to stem cell research

Julianne Zweifel, Mindy Sue Christianson, Ami S. Jaeger, David Olive, Steven R. Lindheim

Research output: Contribution to journalArticle

Abstract

Objective: To assess information needs and decision making among couples donating embryos for stem cell research from outside programs. Design: Qualitative and quantitative interview report. Setting: Academic medical center. Patient(s): Forty-five couples donating embryos to stem cell research. Main Outcome Measure(s): Likert scales were used to assess whether participants regarded embryos as children and whether donation was analogous to organ or blood donation. Use of counseling, consideration of disposition options, and value of the interview were assessed. Recorded responses were analyzed for themes. Result(s): The average length of cryopreservation was 4.8 years. Twenty percent of the embryos were created with donor gametes; 53% of respondents viewed embryos as completely different from children; 31% and 27% considered embryo donation "identical" to organ and blood donation, respectively; 47% chose stem cell research to help others; 96% had not sought counseling in making their decision; and 20% were told they could not donate embryos to other couples. Conclusion(s): Although many couples had questions/concerns regarding disposition, few sought formal counseling. Outside programs may unnecessarily limit the option of donation to other couples. Guidelines are needed to ensure that couples making embryo disposition decisions are properly informed of all options, that third-party gamete issues are addressed, and that psychological support is offered.

Original languageEnglish (US)
Pages (from-to)560-564
Number of pages5
JournalFertility and Sterility
Volume88
Issue number3
DOIs
StatePublished - Sep 2007
Externally publishedYes

Fingerprint

Stem Cell Research
Needs Assessment
Embryonic Structures
Embryo Disposition
Counseling
Tissue and Organ Procurement
Blood Donors
Germ Cells
Decision Making
Embryo Research
Interviews
Cryopreservation
Outcome Assessment (Health Care)
Tissue Donors
Guidelines
Psychology

Keywords

  • embryo disposition
  • patient education
  • psychological support
  • Stem cell research

ASJC Scopus subject areas

  • Obstetrics and Gynecology

Cite this

Needs assessment for those donating to stem cell research. / Zweifel, Julianne; Christianson, Mindy Sue; Jaeger, Ami S.; Olive, David; Lindheim, Steven R.

In: Fertility and Sterility, Vol. 88, No. 3, 09.2007, p. 560-564.

Research output: Contribution to journalArticle

Zweifel, Julianne ; Christianson, Mindy Sue ; Jaeger, Ami S. ; Olive, David ; Lindheim, Steven R. / Needs assessment for those donating to stem cell research. In: Fertility and Sterility. 2007 ; Vol. 88, No. 3. pp. 560-564.
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