TY - JOUR
T1 - Myelodysplastic syndromes
T2 - Challenges to improving patient and caregiver satisfaction
AU - Smith, B. Douglas
N1 - Funding Information:
The author received editorial/writing support provided by Nikki Moreland of Excerpta Medica in the preparation of this manuscript, funded by Celgene Corporation. The author is fully responsible for content and editorial decisions for this manuscript.
PY - 2012/7
Y1 - 2012/7
N2 - The task of improving patient and caregiver satisfaction in the management of myelodysplastic syndromes (MDS) poses many challenges for physicians and patient care teams. Advances in the understanding of MDS biology have resulted in the approval of 3 agents for the treatment of MDS by the US Food and Drug Administration (FDA) in the past decade. However, according to a retrospective physician survey, the majority of recently diagnosed patients with MDS still receive supportive care only. Interestingly, a survey performed in patients with MDS suggests that patient understanding of treatment goals and prognosis is often limited, with a third of patients reporting that prognosis was not discussed with their physician. Efforts to improve patient awareness of their disease severity and establishing clear treatment goals are crucial for setting up an individualized treatment plan and ensuring optimal patient and caregiver satisfaction.
AB - The task of improving patient and caregiver satisfaction in the management of myelodysplastic syndromes (MDS) poses many challenges for physicians and patient care teams. Advances in the understanding of MDS biology have resulted in the approval of 3 agents for the treatment of MDS by the US Food and Drug Administration (FDA) in the past decade. However, according to a retrospective physician survey, the majority of recently diagnosed patients with MDS still receive supportive care only. Interestingly, a survey performed in patients with MDS suggests that patient understanding of treatment goals and prognosis is often limited, with a third of patients reporting that prognosis was not discussed with their physician. Efforts to improve patient awareness of their disease severity and establishing clear treatment goals are crucial for setting up an individualized treatment plan and ensuring optimal patient and caregiver satisfaction.
KW - Caregiver satisfaction
KW - Myelodysplastic syndromes
KW - Patient satisfaction
UR - http://www.scopus.com/inward/record.url?scp=84862840448&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84862840448&partnerID=8YFLogxK
U2 - 10.1016/j.amjmed.2012.04.020
DO - 10.1016/j.amjmed.2012.04.020
M3 - Article
C2 - 22735750
AN - SCOPUS:84862840448
SN - 0002-9343
VL - 125
SP - S26-S30
JO - American Journal of Medicine
JF - American Journal of Medicine
IS - 7 SUPPL.
ER -