Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management

Vanessa K. Noonan, Anne Lyddiatt, Patrick Ware, Susan B. Jaglal, Richard J. Riopelle, Clifton O. Bingham, Sabrina Figueiredo, Richard Sawatzky, Maria Santana, Susan J. Bartlett, Sara Ahmed

Research output: Contribution to journalArticlepeer-review

Abstract

Background There is a shift toward making health care patient centered, whereby patients are part of medical decision-making and take responsibility for managing their health. Patient-reported outcomes (PROs) capture the patient voice and can be used to engage patients in medical decision-making. Objective The objective of this paper is to present important factors from patients’ clinicians’ researchers’ and decision-makers’ perspectives that influence successful adoption of PROs in clinical practice. Factors recommended in this paper were informed by a patient partner. Discussion Based on themes arising from the Montreal Accord proceedings, we describe factors that influence the adoption of PROs and how PROs can have a positive effect by enhancing communication and providing opportunities to engage patients, carers, and clinicians in care. Consideration of patient factors (e.g., health literacy), family support and networks (e.g., peer-support networks), technology (e.g., e-health), and health care system factors (e.g., resources to implement PROs) is necessary to ensure PROs are successfully adopted. PRO evaluation plans most likely to succeed over the long term are those incorporating PROs identified by patients as necessary for self-management and that coincide with providers’ needs for collaboratively developing treatment plans with patients and families.

Original languageEnglish (US)
Pages (from-to)125-135
Number of pages11
JournalJournal of Clinical Epidemiology
Volume89
DOIs
StatePublished - Sep 2017

Keywords

  • Evaluation
  • Patient-centered care
  • Patient-reported outcome measures
  • Self-management
  • Self-report
  • Shared decision-making

ASJC Scopus subject areas

  • Epidemiology

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