Measuring trust in medical researchers

Mark A. Hall, Fabian Camacho, Janice S. Lawlor, Venita DePuy, Jeremy Sugarman, Kevin Weinfurt

Research output: Contribution to journalArticle

Abstract

BACKGROUND: Concern is widespread that the public's and participants' trust in medical research is threatened, but few empirical measures of research trust exist. This project aims to enable more rigorous study of researcher trust by developing and testing appropriate survey measures. METHODS: Survey items were developed based on a conceptual model of the primary domains of researcher trust (safety, fidelity, honesty, global trust). Pilot testing was conducted on a regional convenience sample of adults (n = 124). Exploratory factor analyses of the data were performed, and an item selection procedure reduced the number of survey questions. A final set of 12 items was validated, and a 4-item short version of the researcher trust scale was selected and tested in a national web-based survey of asthma and diabetes patients (n = 3623). Further factor analysis and validation were performed on this larger sample. RESULTS: Both the full and short scales have a single-factor structure with acceptable internal reliability (alphas of 0.87 [12 items] and 0.72 [4 items]). Trust in physician researchers and trust in medical researchers generally were found not to be separate constructs. In the national sample, the short scale was positively associated with better health status, prior participation in medical research, and willingness to participate in a hypothetical medical research study, and negatively associated with African-American race and higher education. CONCLUSIONS: Trust in medical researchers is a measurable single-factor construct including trust in safety, researcher fidelity, and honesty. This new scale provides an empirical tool for informing the ethics and public policy of medical research.

Original languageEnglish (US)
Pages (from-to)1048-1053
Number of pages6
JournalMedical Care
Volume44
Issue number11
DOIs
StatePublished - Nov 2006

Fingerprint

Research Personnel
medical research
Biomedical Research
Statistical Factor Analysis
selection procedure
Safety
Empirical Research
Public Policy
health status
chronic illness
factor analysis
Ethics
African Americans
Health Status
public policy
moral philosophy
physician
Asthma
participation
Physicians

Keywords

  • Scale development
  • Trust in medical researchers
  • Willingness to participate in medical research

ASJC Scopus subject areas

  • Nursing(all)
  • Public Health, Environmental and Occupational Health
  • Health(social science)
  • Health Professions(all)

Cite this

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical Care, 44(11), 1048-1053. https://doi.org/10.1097/01.mlr.0000228023.37087.cb

Measuring trust in medical researchers. / Hall, Mark A.; Camacho, Fabian; Lawlor, Janice S.; DePuy, Venita; Sugarman, Jeremy; Weinfurt, Kevin.

In: Medical Care, Vol. 44, No. 11, 11.2006, p. 1048-1053.

Research output: Contribution to journalArticle

Hall, MA, Camacho, F, Lawlor, JS, DePuy, V, Sugarman, J & Weinfurt, K 2006, 'Measuring trust in medical researchers', Medical Care, vol. 44, no. 11, pp. 1048-1053. https://doi.org/10.1097/01.mlr.0000228023.37087.cb
Hall MA, Camacho F, Lawlor JS, DePuy V, Sugarman J, Weinfurt K. Measuring trust in medical researchers. Medical Care. 2006 Nov;44(11):1048-1053. https://doi.org/10.1097/01.mlr.0000228023.37087.cb
Hall, Mark A. ; Camacho, Fabian ; Lawlor, Janice S. ; DePuy, Venita ; Sugarman, Jeremy ; Weinfurt, Kevin. / Measuring trust in medical researchers. In: Medical Care. 2006 ; Vol. 44, No. 11. pp. 1048-1053.
@article{af86e1de55f6414a8c65fef80dd2fa78,
title = "Measuring trust in medical researchers",
abstract = "BACKGROUND: Concern is widespread that the public's and participants' trust in medical research is threatened, but few empirical measures of research trust exist. This project aims to enable more rigorous study of researcher trust by developing and testing appropriate survey measures. METHODS: Survey items were developed based on a conceptual model of the primary domains of researcher trust (safety, fidelity, honesty, global trust). Pilot testing was conducted on a regional convenience sample of adults (n = 124). Exploratory factor analyses of the data were performed, and an item selection procedure reduced the number of survey questions. A final set of 12 items was validated, and a 4-item short version of the researcher trust scale was selected and tested in a national web-based survey of asthma and diabetes patients (n = 3623). Further factor analysis and validation were performed on this larger sample. RESULTS: Both the full and short scales have a single-factor structure with acceptable internal reliability (alphas of 0.87 [12 items] and 0.72 [4 items]). Trust in physician researchers and trust in medical researchers generally were found not to be separate constructs. In the national sample, the short scale was positively associated with better health status, prior participation in medical research, and willingness to participate in a hypothetical medical research study, and negatively associated with African-American race and higher education. CONCLUSIONS: Trust in medical researchers is a measurable single-factor construct including trust in safety, researcher fidelity, and honesty. This new scale provides an empirical tool for informing the ethics and public policy of medical research.",
keywords = "Scale development, Trust in medical researchers, Willingness to participate in medical research",
author = "Hall, {Mark A.} and Fabian Camacho and Lawlor, {Janice S.} and Venita DePuy and Jeremy Sugarman and Kevin Weinfurt",
year = "2006",
month = "11",
doi = "10.1097/01.mlr.0000228023.37087.cb",
language = "English (US)",
volume = "44",
pages = "1048--1053",
journal = "Medical Care",
issn = "0025-7079",
publisher = "Lippincott Williams and Wilkins",
number = "11",

}

TY - JOUR

T1 - Measuring trust in medical researchers

AU - Hall, Mark A.

AU - Camacho, Fabian

AU - Lawlor, Janice S.

AU - DePuy, Venita

AU - Sugarman, Jeremy

AU - Weinfurt, Kevin

PY - 2006/11

Y1 - 2006/11

N2 - BACKGROUND: Concern is widespread that the public's and participants' trust in medical research is threatened, but few empirical measures of research trust exist. This project aims to enable more rigorous study of researcher trust by developing and testing appropriate survey measures. METHODS: Survey items were developed based on a conceptual model of the primary domains of researcher trust (safety, fidelity, honesty, global trust). Pilot testing was conducted on a regional convenience sample of adults (n = 124). Exploratory factor analyses of the data were performed, and an item selection procedure reduced the number of survey questions. A final set of 12 items was validated, and a 4-item short version of the researcher trust scale was selected and tested in a national web-based survey of asthma and diabetes patients (n = 3623). Further factor analysis and validation were performed on this larger sample. RESULTS: Both the full and short scales have a single-factor structure with acceptable internal reliability (alphas of 0.87 [12 items] and 0.72 [4 items]). Trust in physician researchers and trust in medical researchers generally were found not to be separate constructs. In the national sample, the short scale was positively associated with better health status, prior participation in medical research, and willingness to participate in a hypothetical medical research study, and negatively associated with African-American race and higher education. CONCLUSIONS: Trust in medical researchers is a measurable single-factor construct including trust in safety, researcher fidelity, and honesty. This new scale provides an empirical tool for informing the ethics and public policy of medical research.

AB - BACKGROUND: Concern is widespread that the public's and participants' trust in medical research is threatened, but few empirical measures of research trust exist. This project aims to enable more rigorous study of researcher trust by developing and testing appropriate survey measures. METHODS: Survey items were developed based on a conceptual model of the primary domains of researcher trust (safety, fidelity, honesty, global trust). Pilot testing was conducted on a regional convenience sample of adults (n = 124). Exploratory factor analyses of the data were performed, and an item selection procedure reduced the number of survey questions. A final set of 12 items was validated, and a 4-item short version of the researcher trust scale was selected and tested in a national web-based survey of asthma and diabetes patients (n = 3623). Further factor analysis and validation were performed on this larger sample. RESULTS: Both the full and short scales have a single-factor structure with acceptable internal reliability (alphas of 0.87 [12 items] and 0.72 [4 items]). Trust in physician researchers and trust in medical researchers generally were found not to be separate constructs. In the national sample, the short scale was positively associated with better health status, prior participation in medical research, and willingness to participate in a hypothetical medical research study, and negatively associated with African-American race and higher education. CONCLUSIONS: Trust in medical researchers is a measurable single-factor construct including trust in safety, researcher fidelity, and honesty. This new scale provides an empirical tool for informing the ethics and public policy of medical research.

KW - Scale development

KW - Trust in medical researchers

KW - Willingness to participate in medical research

UR - http://www.scopus.com/inward/record.url?scp=33748972418&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=33748972418&partnerID=8YFLogxK

U2 - 10.1097/01.mlr.0000228023.37087.cb

DO - 10.1097/01.mlr.0000228023.37087.cb

M3 - Article

VL - 44

SP - 1048

EP - 1053

JO - Medical Care

JF - Medical Care

SN - 0025-7079

IS - 11

ER -