Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease

Barbara Speller-Brown, Katherine Patterson Kelly, Brigit VanGraafeiland, Suzanne Feetham, Anne Sill, Deepika Darbari, Emily R. Meier

Research output: Contribution to journalArticle

Abstract

Adolescents and young adults (AYAs) often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease.

Original languageEnglish (US)
Article number1320
Pages (from-to)788-796
Number of pages9
JournalJournal of pediatric nursing
Volume30
Issue number5
DOIs
StatePublished - Sep 1 2015

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Keywords

  • Adolescents
  • Health care responsibility
  • Parent involvement
  • Sickle cell disease
  • Transition readiness
  • Young adults

ASJC Scopus subject areas

  • Pediatrics

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