TY - JOUR
T1 - Measuring knowledge of disease management in adolescents with cystic fibrosis
T2 - Initial psychometric evaluation
AU - Bernstein, Ruth M.
AU - Riekert, Kristin A.
AU - Quittner, Alexandra L.
N1 - Funding Information:
The authors would like to thank the Cystic Fibrosis Foundation for the use of CF Foundation Patient Registry data to conduct this study. Additionally, they would like to thank the patients, care providers, and clinic coordinators at CF Centers throughout the United States for their contributions to the CF Foundation Patient Registry. This study was funded by The Cystic Fibrosis Foundation and Genentech, Inc. [grant number RIEKER08AO], & Novartis Pharmaceuticals Corp. [grant number P065223578]. Analyses and article preparation was performed at the University of Miami.
Publisher Copyright:
© Copyright 2018, Mary Ann Liebert, Inc. 2018.
PY - 2018/6
Y1 - 2018/6
N2 - There are no updated, valid knowledge measures for adolescents with cystic fibrosis (CF). This study assessed the psychometric properties of the Knowledge of Disease Management-CF (KDM-CF). Participants (n = 266 age 11-20 years; 50% female) completed the KDM-CF. Items were examined based on floor/ceiling thresholds, clinical relevance, and correlation with its subscale. Item difficulty and discrimination, subscale structure, reliability, and convergent and discriminant validity were also examined. Two subscales were identified, Self-Management (12 items, M = 67.58, SD = 22.44) and Treatment Information (11 items, M = 65.69, SD = 22.22), in addition to Total Knowledge (M = 66.67, SD = 18.56). The KDM-CF demonstrated good subscale structure and internal consistency (α = 0.68-0.78). Convergent validity was found for age (older; β = 2.836-3.593); discriminant validity was found for gender (females had higher scores; F(1) = 4.945-6.47). The KDM-CF demonstrated adequate reliability and validity, good scale structure, good item difficulty and discrimination, and revealed knowledge deficits. The KDM-CF can be used to identify and remediate knowledge gaps in adolescents with CF.
AB - There are no updated, valid knowledge measures for adolescents with cystic fibrosis (CF). This study assessed the psychometric properties of the Knowledge of Disease Management-CF (KDM-CF). Participants (n = 266 age 11-20 years; 50% female) completed the KDM-CF. Items were examined based on floor/ceiling thresholds, clinical relevance, and correlation with its subscale. Item difficulty and discrimination, subscale structure, reliability, and convergent and discriminant validity were also examined. Two subscales were identified, Self-Management (12 items, M = 67.58, SD = 22.44) and Treatment Information (11 items, M = 65.69, SD = 22.22), in addition to Total Knowledge (M = 66.67, SD = 18.56). The KDM-CF demonstrated good subscale structure and internal consistency (α = 0.68-0.78). Convergent validity was found for age (older; β = 2.836-3.593); discriminant validity was found for gender (females had higher scores; F(1) = 4.945-6.47). The KDM-CF demonstrated adequate reliability and validity, good scale structure, good item difficulty and discrimination, and revealed knowledge deficits. The KDM-CF can be used to identify and remediate knowledge gaps in adolescents with CF.
KW - adolescent
KW - assessment
KW - disease management
KW - knowledge
KW - psychometric evaluation
UR - http://www.scopus.com/inward/record.url?scp=85048959268&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85048959268&partnerID=8YFLogxK
U2 - 10.1089/ped.2017.0850
DO - 10.1089/ped.2017.0850
M3 - Article
AN - SCOPUS:85048959268
SN - 2151-321X
VL - 31
SP - 56
EP - 65
JO - Pediatric, Allergy, Immunology, and Pulmonology
JF - Pediatric, Allergy, Immunology, and Pulmonology
IS - 2
ER -