Measuring knowledge of disease management in adolescents with cystic fibrosis: Initial psychometric evaluation

Ruth M. Bernstein, Kristin A. Riekert, Alexandra L. Quittner

Research output: Contribution to journalArticlepeer-review

1 Scopus citations


There are no updated, valid knowledge measures for adolescents with cystic fibrosis (CF). This study assessed the psychometric properties of the Knowledge of Disease Management-CF (KDM-CF). Participants (n = 266 age 11-20 years; 50% female) completed the KDM-CF. Items were examined based on floor/ceiling thresholds, clinical relevance, and correlation with its subscale. Item difficulty and discrimination, subscale structure, reliability, and convergent and discriminant validity were also examined. Two subscales were identified, Self-Management (12 items, M = 67.58, SD = 22.44) and Treatment Information (11 items, M = 65.69, SD = 22.22), in addition to Total Knowledge (M = 66.67, SD = 18.56). The KDM-CF demonstrated good subscale structure and internal consistency (α = 0.68-0.78). Convergent validity was found for age (older; β = 2.836-3.593); discriminant validity was found for gender (females had higher scores; F(1) = 4.945-6.47). The KDM-CF demonstrated adequate reliability and validity, good scale structure, good item difficulty and discrimination, and revealed knowledge deficits. The KDM-CF can be used to identify and remediate knowledge gaps in adolescents with CF.

Original languageEnglish (US)
Pages (from-to)56-65
Number of pages10
JournalPediatric, Allergy, Immunology, and Pulmonology
Issue number2
StatePublished - Jun 2018


  • adolescent
  • assessment
  • disease management
  • knowledge
  • psychometric evaluation

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Immunology and Allergy
  • Pulmonary and Respiratory Medicine


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