Managing sensitive phenotypic data and biomaterial in large-scale collaborative psychiatric genetic research projects: Practical considerations

S. Y. Demiroglu, D. Skrowny, M. Quade, J. Schwanke, M. Budde, V. Gullatz, D. Reich-Erkelenz, J. J. Jakob, P. Falkai, O. Rienhoff, K. Helbing, U. Heilbronner, T. G. Schulze

Research output: Contribution to journalArticlepeer-review

Abstract

Large-scale collaborative research will be a hallmark of future psychiatric genetic research. Ideally, both academic and non-academic institutions should be able to participate in such collaborations to allow for the establishment of very large samples in a straightforward manner. Any such endeavor requires an easy-to-implement information technology (IT) framework. Here we present the requirements for a centralized framework and describe how they can be met through a modular IT toolbox.

Original languageEnglish (US)
Pages (from-to)1180-1185
Number of pages6
JournalMolecular Psychiatry
Volume17
Issue number12
DOIs
StatePublished - Dec 2012
Externally publishedYes

Keywords

  • biobanking
  • data protection
  • GWAS
  • IT infrastructure
  • pseudonyms
  • sequencing

ASJC Scopus subject areas

  • Molecular Biology
  • Psychiatry and Mental health
  • Cellular and Molecular Neuroscience

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